Barth syndrome is a rare genetic condition that usually affects boys and men (though we do have girls within our group)
Main symptoms:
Heart muscle weakness (cardiomyopathy)
Neutropenia (lack of white blood cells needed to fight bacterial infections)
Fatigue and general muscle weakness
Growth/feeding issues
Barth Syndrome UK is a well-established community of families, medical professionals, scientists, donors and volunteers with links to other affiliates all around the world. We provide the most comprehensive source of reliable and current information about this condition and we invite you to visit our pages to find the information you seek.
Company Details
- Employees
- 2
- Address
- Romsey, Gb
- Industry
- Non-Profit Organizations
- HQ
- Romsey
Barth Syndrome Uk Questions
Barth Syndrome Uk's website is https://www.barthsyndrome.org.uk/
Barth Syndrome Uk's LinkedIn profile is https://uk.linkedin.com/company/barth-syndrome-uk
Barth Syndrome Uk has
2 employees.
View email and phone details for 2
employees at Barth Syndrome Uk.
Barth Syndrome Uk's industry is
Non-profit Organizations
Barth Syndrome Uk's top competitors are
Oxford Rare Disease Society,
Bardet-Biedl Syndrome Uk,
British Porphyria Association,
Tango2uk,
Cardiff And Wales Rare Disease Society,
The Sherrington Society,
Fire Protection Recycling,
Alstrom Syndrome Uk,
Cadasil Support Uk,
Aniridia Network.
Barth Syndrome Uk's categories are Non-profit Organizations
