CFC International

CFC International is a registered 501(c)(3) charitable nonprofit organization dedicated to improving the quality of life for individuals with CFC Syndrome and their families. The organization focuses on family support, research, awareness, advocacy, and education. CFC Syndrome is a rare genetic condition that primarily affects the heart (cardio), facial features (facio), and skin (cutaneous). It occurs with equal frequency in both males and females across all ethnic groups. Individuals with CFC Syndrome may exhibit specific characteristics that suggest the diagnosis, including a relatively large head size, down-slanting eyes, sparse eyebrows, curly hair, thickened or scaly skin, and short stature. Most individuals will also have a heart defect and many have seizures. While the severity of CFC Syndrome can vary widely, most affected individuals experience some range of learning difficulty and/or developmental delay.