CIS Orphan Consortium

The CIS Orphan Consortium unites leading healthcare institutions, research centers, and patient advocacy groups from across the CIS region, aiming to enhance access to diagnosis, treatment, and care for patients with rare diseases. The consortium operates as a collaborative network focused on joint scientific research, clinical trials, and the implementation of innovative diagnostic and therapeutic approaches. It plays a pivotal role in improving reimbursement access by supporting health technology assessment (HTA) processes and providing comprehensive methodological guidance to align clinical practices and policy frameworks. By fostering knowledge exchange and harmonizing clinical guidelines, the consortium strives to improve healthcare outcomes, ensuring timely and equitable access to effective treatments for patients, families, and healthcare professionals across the region.