The Cri du Chat Research Foundation
Non-Profit Organization Management
Brooklyn, New York, United States
3 employees
- Employees
- 3
- Contacts
- 1
- Emails
- 1
The Cri du Chat Research Foundation Overview
- Headquarters
- Brooklyn, New York, United States
- Website
- www.criduchatresearch.org
- Industry
- Non-Profit Organization Management
- Employees
- 3
- Founded
- 2014
About The Cri du Chat Research Foundation
The Cri du Chat Research Foundation is a 501c3 Non-Profit Organization, based in New York City, committed to developing a treatment to minimize or cure symptoms of Cri du Chat Syndrome (CdCS), also known as 5p Minus Syndrome. Cri du Chat Syndrome is a rare chromosomal disorder that impacts 1 in 15,000 newborns annually. The Syndrome causes many challenges, including muscle weakness and coordination deficits, apraxia of speech, swallowing issues and autism. Some children have major organ involvement such as heart and kidney disease, or suffer from brain seizures. The diagnosis of CdCS / 5p Minus is a spectrum disorder due to the wide range of symptoms, but all individuals require lifelong support even with today's interventions and therapies. The Cri du Chat Research Foundation is committed to developing a medical treatment, such as a Gene therapy (replacing or repairing the function of a targeted gene or genes by introducing specific genetic material) or RNA therapy (a new class of medication, like the coronavirus vaccines) which would create an impact at the genetic level for the CdCS Individual to minimize or cure symptoms of Cri du Chat Syndrome. The Foundation's years of support for innovative research has created an opportunity for the scientific breakthrough needed for this rare genetic disease and real promise for changing the lives of those impacted by Cri du Chat 5p Minus syndrome. **Cri Du Chat Research Foundation is a tax-exempt organization as described in Section 501(c)(3) of the Internal Revenue Code; EIN 47-1749667**
The Cri du Chat Research Foundation Contact Details
- People in AeroLeads
- 3
- With contact data
- 1
- Email contacts
- 1
- 33.3% coverage
The Cri du Chat Research Foundation Org Chart
Sample employees and titles| Name | Title | Location | Contact |
|---|---|---|---|
| James Alberino | Medtronic | New Haven, Connecticut, United States |
Email
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| Joseph Pick | Phd Neuroscientist - Biotech - Rare |
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|
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| Megan Leston | Co-founder of the Cri Du Chat Research | United States |
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|
Employees by Management Level
Individual contributor
2 profiles
Executive
1 profile
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