The Cri du Chat Research Foundation is a 501c3 Non-Profit Organization, based in New York City, committed to developing a treatment to minimize or cure symptoms of Cri du Chat Syndrome (CdCS), also known as 5p Minus Syndrome.
Cri du Chat Syndrome is a rare chromosomal disorder that impacts 1 in 15,000 newborns annually. The Syndrome causes many challenges, including muscle weakness and coordination deficits, apraxia of speech, swallowing issues and autism. Some children have major organ involvement such as heart and kidney disease, or suffer from brain seizures. The diagnosis of CdCS / 5p Minus is a spectrum disorder due to the wide range of symptoms, but all individuals require lifelong support even with today's interventions and therapies.
The Cri du Chat Research Foundation is committed to developing a medical treatment, such as a Gene therapy (replacing or repairing the function of a targeted gene or genes by introducing specific genetic material) or RNA therapy (a new class of medication, like the coronavirus vaccines) which would create an impact at the genetic level for the CdCS Individual to minimize or cure symptoms of Cri du Chat Syndrome.
The Foundation's years of support for innovative research has created an opportunity for the scientific breakthrough needed for this rare genetic disease and real promise for changing the lives of those impacted by Cri du Chat 5p Minus syndrome.
**Cri Du Chat Research Foundation is a tax-exempt organization as described in Section 501(c)(3) of the Internal Revenue Code; EIN 47-1749667**
Company Details
- Employees
- 3
- Founded
- -
- Address
- 1, Brooklyn,new York,united States
- Industry
- Non-Profit Organization Management
- Website
- http://www.criduchatresearch.org
- Keywords
- Not for Profit, Cri du Chat Syndrome, 5p minus Syndrome, Rare Disease, Biomedical Research, CDC Research, Biobank and Registry, Fundraising, Charity Events, Volunteering.
- HQ
- Brooklyn, New York
The Cri Du Chat Research Foundation Questions
The Cri Du Chat Research Foundation's website is http://www.criduchatresearch.org
The Cri Du Chat Research Foundation's LinkedIn profile is https://www.linkedin.com/company/criduchatresearch
The Cri Du Chat Research Foundation has
3 employees.
View email and phone details for 3
employees at The Cri Du Chat Research Foundation.
The Cri Du Chat Research Foundation's industry is
Non-profit Organization Management
The Cri Du Chat Research Foundation's top competitors are
Rainforest Trust,
Partners For Public Good,
Vzw In Vereffening Cri-Du-Chat,
Chadd (Children And Adults With Adhd),
Quocia,
Mom Of Special Needs,
Tahoe Therapeutics,
National Organization For Rare Disorders,
Neurodiversity Education Academy,
Build Emotional Intelligence.
The Cri Du Chat Research Foundation's categories are Non-profit Organization Management
The Cri Du Chat Research Foundation's founding year is 2014
