CureforU

Our origin : We are a group of people who are linked in different ways due to these Rare Diseases. We want to capitalize on this energy, passion and value driven from personal life experiences to make meaningful difference in lives of people living with rare disease Our vision : Facilitate better cures for people living with a Rare Disease by enabling health care professionals to connect, collaborate and learn from each other. Overall ambition is to provide digital platform to create dynamic collaborative networks of Western & Eastern Medical experts which facilitate better treatment outcomes for people living with a Rare Disease. Networks would be used; 1. To share and discuss medical cases to foster Medical Learning and Expand Clinical Knowledge. 2. To request / provide specialized Medical Opinion for complex cases to help improve the diagnosis and outcome for people living with a Rare Disease 3. To facilitate medical Institute to Institute level collaborations (West <-> East) to improve the medical standards We are at very beginning of our journey and looking for help - On technical aspects for our web tools / portal (frontend / backend development, UI etc.) - To expand network of medical experts by reaching out and convincing existing professional platforms / bodies to join hands If you are passionate about helping people with rare disease and willing to help as volunteer (full or part time) for any of above areas, please contact us.