Dandy-Walker Alliance

The Dandy-Walker Alliance is here to support those who have Dandy-Walker Syndrome and their families. We provide outreach and individualized support to families in more than 80 countries so that nobody feels alone when faced with Dandy-Walker. We help educate families and medical professionals, providing educational and informational resources to help them better understand the diagnosis and pave a path forward. We highlight stories of families and individuals around the world to showcase the meaningful life that someone with Dandy-Walker can live. We help fund research to understand the genetic causes of Dandy-Walker with a goal of finding better treatments and creating better outcomes.