The E.WE Foundation is a global healthcare advocacy organization dedicated to improving the lives of individuals and families impacted by rare diseases, with a hyperfocus on Trisomy 18 (Edwards Syndrome).
Our mission is to provide resources and support to families impacted by rare diseases like Trisomy 18, while changing the medical perspective through advocacy, education, and public policy. Through its core programs, LEAP, ZEBRA, and STRIPE, the E.WE Foundation is committed to health literacy and community education, comfort care and mental health, and to providing economic assistance to Trisomy 18 families experiencing financial hardship.
The E.WE Foundation works collaboratively with nonprofit organizations, school systems, and state agencies across the country to advance rare disease awareness, education, and legislation. The organization is also committed to empowering diverse voices within the rare disease community to advance health system advocacy, research, and public policy initiatives. Through its work, the E.WE Foundation continues to make a profound impact, ensuring that every individual affected by a rare disease receives the care, support, and recognition they deserve.
The E.WE Foundation was founded by Kareem & Sarita Edwards, parents to Elijah who was diagnosed in utero with a rare genetic condition called Trisomy 18 (Edwards Syndrome).
Company Details
- Employees
- 4
- Founded
- -
- Address
- Huntsville, Alabama, Us
- Industry
- Non-Profit Organization Management
- Website
- https://theewefoundation.org
- Keywords
- health literacy, community education, patient advocacy, public policy, health & racial equity, mental health, comfort care, economic assistance.
- HQ
- Huntsville, Alabama
The E.we Foundation Questions
The E.We Foundation's website is https://theewefoundation.org
The E.We Foundation's LinkedIn profile is https://www.linkedin.com/company/e-wefoundation
The E.We Foundation has
4 employees.
View email and phone details for 4
employees at The E.We Foundation.
The E.We Foundation's industry is
Non-profit Organization Management
The E.We Foundation's top competitors are
Physicians Family Healthcare,
Soul Popped, Inc,
Tápi Studios,
Usher Syndrome Ireland,
Philadelphia Science Action,
Laubscher & Co. Ag,
Pathways To Trust,
Egeria Healthcare,
R69 Initiative,
Westside Terrace Healthcare.
The E.We Foundation's categories are Non-profit Organization Management
The E.We Foundation's founding year is 2019
