ERKNet

ERKNet, the European Reference Network for Rare Kidney Diseases, is a collaborative alliance of 72 specialized pediatric and adult nephrology centers in 24 European countries. Our main mission is to provide comprehensive medical care to a large community of over 70,000 patients with rare kidney diseases. Members of our network are committed to providing the highest level of multidisciplinary care for a broad spectrum of rare kidney diseases. They consistently adhere to clinical guidelines and protocols based on the latest medical advances, while ensuring rigorous monitoring of treatment quality and outcomes across the network. Beyond our clinical efforts, ERKNet is dedicated to improving knowledge about rare kidney disease, both among patients and healthcare professionals. We accomplish this by disseminating information about the disease through our website and a number of educational and training initiatives. To meet the needs of our patients, our network works closely with European patient advocacy groups (ePAGs) and various kidney patient communities and organizations. In addition, ERKNet plays an active role in supporting clinical research aimed at refining diagnosis, predicting risks, and advancing the development of new therapies for people with rare kidney disease.