ERNICA

ERNICA is the European Reference Network for rare inherited and congenital digestive disorders, including gastro-intestinal disorders. ERNICA is a network of 20 expert health centres across 10 European countries. The network is coordinated by Erasmus Medical Centre, Rotterdam and it is led by Prof. dr. René Wijnen. ERNICA seeks to facilitate cooperation between expert centres across Europe to support the provision of high quality care. The network aims to: - Promote initial care for patients via strengthened referral systems - Provide a resource-hub for patients with inherited and congenital digestive disorders and their families across Europe - Provide independent and high quality educational opportunities to medical, nursing and other healthcare professionals in inherited and congenital digestive disorders throughout Europe - Deliver high standards of care - Build capacity where there is lack of knowledge and infrastructure; - Connect healthcare professionals, scientists, patients and the public to improve quality of care; - Open a dialogue with policy-makers and national authorities to overcome existing regulatory barriers for the provision of cross-border care