The European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (or E.S.PKU) is the umbrella organisation of about 41 national and regional associations from 31 countries established by parents.
Since 1987, representatives of most European countries have come together to improve the quality of life of persons afflicted.
The rather short history of the E.S.PKU already shows that the quality has improved considerably.
The main event of the E.S.PKU is a yearly European conference. This conference is unique, since both patients (and parents) as well as medical representatives join this meeting. The patients have their own sessions and there is a medical conference. In between the sessions there is time enough to get to know each other.
Next to this conference the E.S.PKU supports the members. The organisation has its own lobby in the EU. And has good contacts on European (and worldwide) level with companies.
Company Details
- Employees
- 3
- Founded
- -
- Address
- No Street, Bruxelles,bruxelles 1000,belgium
- Industry
- Wellness And Fitness Services
- NAICS
-
Fitness and Recreational Sports Centers
- Website
- espku.org
- Keywords
- Rare Disease, Non Profit, Phenylketonuria.
- HQ
- Bruxelles, Bruxelles
- Competitors
- Blokado, Federación Española de Enfermedades Metabólicas Hereditarias, PKU Diet • calculation of Phenylalanine, Association nationale Les Feux Follets, National PKU Alliance, PKU Association of Ireland, Journal of Inherited Metabolic Disease, PKU vereniging België, PKU Aile Derneği / PKU Turkey, PTC Therapeutics, Inc..
European Society For Phenylketonuria And Allied Disorders Treated As Phenylketonuria Questions
European Society For Phenylketonuria And Allied Disorders Treated As Phenylketonuria's website is espku.org
European Society For Phenylketonuria And Allied Disorders Treated As Phenylketonuria's LinkedIn profile is https://be.linkedin.com/company/espku
European Society For Phenylketonuria And Allied Disorders Treated As Phenylketonuria has
3 employees.
View email and phone details for 3
employees at European Society For Phenylketonuria And Allied Disorders Treated As Phenylketonuria.
European Society For Phenylketonuria And Allied Disorders Treated As Phenylketonuria's industry is
Wellness and Fitness Services
European Society For Phenylketonuria And Allied Disorders Treated As Phenylketonuria's top competitors are
Blokado,
Federación Española De Enfermedades Metabólicas Hereditarias,
Pku Diet • Calculation Of Phenylalanine,
Association Nationale Les Feux Follets,
National Pku Alliance,
Pku Association Of Ireland,
Journal Of Inherited Metabolic Disease,
Pku Vereniging België,
Pku Aile Derneği / Pku Turkey,
Ptc Therapeutics, Inc..
European Society For Phenylketonuria And Allied Disorders Treated As Phenylketonuria's categories are Wellness and Fitness Services
European Society For Phenylketonuria And Allied Disorders Treated As Phenylketonuria's founding year is 1987
