European Tay-Sachs & Sandhoff Charity Consortium (ETSCC)

The ETSCC was created to enable European charities to come together in the fight against Tay-Sachs and Sandhoff. Members are all recognised charities in their country of origin. The three aims of the ETSCC are to raise awareness of Tay-Sachs and Sandhoff, support the research for a potential treatment and provide a united European voice. The members of the ETSCC meet once a year to discuss the progress of the research into Tay-Sachs and Sandhoff and the consortiums strategy.