Company

Firefly Fund

Philanthropic Fundraising Services Austin, Texas, United States 6 employees

Employees: 6

fireflyfund.org LinkedIn

Firefly Fund Overview

Headquarters: Austin, Texas, United States
Website: fireflyfund.org
Industry: Philanthropic Fundraising Services
Employees: 6
Founded: 2017
NAICS: Grantmaking and Giving Services

Grantmaking Foundations

Voluntary Health Organizations

Keywords

Newborn Screening Awareness Coalitions NPC Rare Diseases

About Firefly Fund

Firefly Fund provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children and currently have no cure. The inspiration behind the Firefly Fund came after parents Pam and Chris Andrews discovered that both of their daughters, Belle age 6 and Abby age 2, had Niemann-Pick Type C1 (NPC1) in early 2016. NPC1 is a progressive neurodegenerative disease that attacks every cell of the human body and has a lifespan of 12-20 years.