Firefly Fund provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children and currently have no cure.
The inspiration behind the Firefly Fund came after parents Pam and Chris Andrews discovered that both of their daughters, Belle age 6 and Abby age 2, had Niemann-Pick Type C1 (NPC1) in early 2016. NPC1 is a progressive neurodegenerative disease that attacks every cell of the human body and has a lifespan of 12-20 years.
Company Details
- Founded
- -
- Address
- P.o. Box 92616, Austin,texas 78709,united States
- Industry
- Philanthropic Fundraising Services
- NAICS
-
Grantmaking and Giving ServicesGrantmaking FoundationsVoluntary Health OrganizationsOther Grantmaking and Giving Services
- Website
- https://fireflyfund.org/
- HQ
- Austin, Texas
Firefly Fund Questions
Firefly Fund's website is https://fireflyfund.org/
Firefly Fund's LinkedIn profile is https://www.linkedin.com/company/firefly-fund
Firefly Fund's industry is
Philanthropic Fundraising Services
Firefly Fund's categories are Philanthropic Fundraising Services
Firefly Fund's founding year is 2017
