Flutters and Strutters

Patient Advocacy Organisation & online social media communications network. Our services are for people affected by chronic illnesses and rare disease. This includes care providers, health professionals and those within the medical healthcare related industries. #notjustpatients We endeavour to promote the idea of a multidisciplinary approach to health and medicine that benefits all involved. Providing a network that is open for everyone to join, follow, and meet others from across the health and medical industries. Another key element of our advocacy beyond disease awareness is to encourage better communication through plain language summaries. Promoting the fact that everyone should be able to access and read research. Health literacy to us does not just apply to medication leaflets, but to consent forms, research surveys, journal articles and research papers. None of it should be hidden behind paywalls either! Patients rely on many people from across the medical health related industries, not just doctors and nurses. They also need drug developers, researchers, lab technicians, ambulance drivers and paramedics, medical students, politicians, medical lawyers, and many other stakeholders. It is only right that everyone is involved when it comes to creating better health pathways and treatments that provide better patient outcomes. Because of this advocating and getting involved with patient engagement best practice is at the heart of our organisation.