FSHD Society
Philanthropic Fundraising Services
Massachusetts, United States
50 employees
- Employees
- 50
- Contacts
- 4
- Emails
- 4
- Phones
- 2
FSHD Society Overview
- Headquarters
- Massachusetts, United States
- Phone Number
- Available in AeroLeads
- Website
- fshdsociety.org
- Industry
- Philanthropic Fundraising Services
- Employees
- 50
- Founded
- 1991
- Company Email
- Available in AeroLeads
- NAICS
-
Grantmaking and Giving ServicesGrantmaking FoundationsVoluntary Health Organizations
About FSHD Society
The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone. Our Vision: A world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD) Our Mission: Find treatments and a cure for FSHD while empowering our families Our Strategies: - Accelerate the development of treatments and a cure for FSHD - Increase, engage, and empower our stakeholders - Aggressively leverage and expand resources to support our Mission Our Core Values: Research | Community | Urgency
FSHD Society Contact Details
- People in AeroLeads
- 4
- With contact data
- 4
- Email contacts
- 4
- 100.0% coverage
- Phone contacts
- 2
- 50.0% coverage
FSHD Society Org Chart
Sample employees and titles| Name | Title | Location | Contact |
|---|---|---|---|
| Beth Johnston | Chief Community Engagement Officer | Denver Metropolitan Area, United States |
Email
Phone
|
| June Kinoshita | Waltham, Massachusetts, United States |
Email
Phone
|
|
| Ken K. | Chief Operating Officer @ Fshd Society | Kansas City Metropolitan Area, United States |
Email
|
| Frank Kolakowski | Member Board of Directors @ Fsh | Rockville, Maryland, United States |
Email
|
Employees by Management Level
Executive
4 profiles
Director
4 profiles
Manager
4 profiles
Individual contributor
4 profiles
Senior / Lead
1 profile
Associate / junior
1 profile
Department Contact Coverage
| Department | Contacts | Phone | |
|---|---|---|---|
| Executive | 6 | 6 | 5 |
| General | 2 | 2 | 2 |
| Marketing | 1 | 1 | 1 |
| Healthcare | 1 | 1 | 0 |
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