The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.
Our Vision: A world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD)
Our Mission: Find treatments and a cure for FSHD while empowering our families
Our Strategies:
- Accelerate the development of treatments and a cure for FSHD
- Increase, engage, and empower our stakeholders
- Aggressively leverage and expand resources to support our Mission
Our Core Values: Research | Community | Urgency
Company Details
- Employees
- 50
- Founded
- -
- Address
- Massachusetts, Us
- Phone
- (781) 301-6060
- Industry
- Philanthropic Fundraising Services
- NAICS
-
Grantmaking and Giving ServicesGrantmaking FoundationsVoluntary Health OrganizationsOther Grantmaking and Giving Services
- Website
- fshdsociety.org
- Keywords
- Medical research funding, Fundraising and development, Patient education, Advocacy, Rare disease, muscular dystrophy, neuromuscular, clinician education.
- HQ
- Massachusetts
Fshd Society Questions
Fshd Society's helpline number is (781) 301-6060
Fshd Society's website is fshdsociety.org
Fshd Society's LinkedIn profile is https://www.linkedin.com/company/fshd-society
Fshd Society has
50 employees.
View email and phone details for 50
employees at Fshd Society.
Fshd Society's industry is
Philanthropic Fundraising Services
Fshd Society's top competitors are
Paladin,
Fshd Europe/ Fshd European Trial Network,
Accessia Health,
Muscular Dystrophy Association,
Lumiio Inc.,
Fulcrum Therapeutics,
Solve Fshd,
Avidity Biosciences, Inc.,
Kalderos,
Fshd Global Research Foundation.
Fshd Society's categories are Philanthropic Fundraising Services
Fshd Society's founding year is 1991
