Global DARE Foundation

Global DARE Foundation's mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease. Our goal is to support research, education initiatives, awareness campaigns, and advocacy. Driving research is at the center of what we do because we DARE to believe there is a cure for Adult Refsum Disease. The Global DARE foundation is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to improving the lives of those affected by Refsum Disease. Many around the world face a lengthy diagnostic journey for years while losing their quality of life. The Global DARE Foundation will advocate for change. DARE stands for Defeat Adult Refsum Everywhere