Hae Pakistan

It's an organisation that is working for patients with a Rare genetic Blood disorder named Hereditary Angioedema (Hae). Hae Pakistan got affiliated with Haei International patients organisation with the deficiency of C1 Esterase from the month of December 2019. Hae can be found in 1 person out of 30000 to 50000 people. Hae has no cure , and it's a dangerously life threatening disease. To prevent from this disease there is necessary to maintain a balance of a protein Named C1estrase . it's done by giving a prescribed dose to the patient on permanent basis like insulin control diabetes in diabetic patients. The treatment of Hae is one the most expensive treatments. Hae Pakistan is working for the awareness of the disease and strustruggling for getting attention from Government and other charity organisations to help patients in getting proper diagnostic and medical treatments. Hae is soo Rare disease even 90% Doctors are not aware of that.