Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH). Our goal is to create a single, credible source for information about the diagnosis, treatment, and support of individuals with HH. Every family touched by this rare disorder has a unique and often heart-breaking story of how they attained a correct diagnosis. Obtaining a correct diagnosis can take months and even years and often involves incorrect diagnoses. Once a diagnosis is confirmed, many families struggle with choosing an appropriate course of treatment, if one is even available. Regardless of treatment, managing the daily lives of HH patients and dealing with the long term and frequently devastating effects of HH requires ongoing information and support.
Company Details
- Employees
- 4
- Founded
- -
- Address
- Eagle, Id 83616, Us
- Industry
- Wellness And Fitness Services
- NAICS
-
Fitness and Recreational Sports Centers
- Website
- hopeforhh.org
- Keywords
- Epilepsy, Hypothalamic Hamartoma, Rare Disease, Brain Tumor, Gelastic Seizures, Hypothalamic Obesity, Hypothalamic Rages.
- HQ
- Eagle, ID
Hope For Hypothalamic Hamartomas Questions
Hope For Hypothalamic Hamartomas's website is hopeforhh.org
Hope For Hypothalamic Hamartomas's LinkedIn profile is https://www.linkedin.com/company/hope-for-hypothalamic-hamartomas
Hope For Hypothalamic Hamartomas has
4 employees.
View email and phone details for 4
employees at Hope For Hypothalamic Hamartomas.
Hope For Hypothalamic Hamartomas's industry is
Wellness and Fitness Services
Hope For Hypothalamic Hamartomas's top competitors are
Aphm (Assistance Publique - Hopitaux De Marseille),
Neuro Pathway, Llc,
Epilepsie-France,
Bethesda Scholars Llc,
Elekta,
Karl Hugo Mechanics.
Hope For Hypothalamic Hamartomas's categories are Wellness and Fitness Services
Hope For Hypothalamic Hamartomas's founding year is 2009
