HOPE Spina Bifida and Hydrocephalus (HOPE-SBH)

HOPE Spina Bifida and Hydrocephalus (HOPE-SBH): Transforming Lives, Advancing Inclusion HOPE-SBH is Ethiopia’s first nonprofit dedicated to preventing spina bifida and hydrocephalus (SBH), supporting affected families, and promoting disability inclusion. As a women-led, disability-focused organization, we advocate for policy change, healthcare access, and social empowerment. What We Do: ✅ Prevention & Awareness – Advocating for food fortification to combat micronutrient deficiencies, especially folic acid deficiency linked to birth defects. We engage policymakers, health professionals, and the public in maternal nutrition education. ✅ Healthcare Access – Facilitating neurosurgeries, rehabilitation, and medical supplies for children with SBH by partnering with hospitals and specialists. ✅ Youth & Parent Empowerment – Providing counseling, mentorship, and skills-building programs. Our parent network connects caregivers for peer support and advocacy. ✅ Advocacy & Policy Influence – Collaborating with governments, UN partners, and donors to shape policies on disability rights, inclusive healthcare, and social protection. ✅ Humanitarian Integration – Ensuring disability-inclusive emergency responses in humanitarian efforts. ✅ Strategic Partnerships – Working with corporate, NGO, and research partners to improve healthcare, education, and livelihood opportunities. Our Impact: Advocated for national food fortification policies to prevent neural tube defects. Connected families with specialized healthcare and disability services. Created platforms for youth with SBH to share experiences and advocate for their rights. At HOPE-SBH, we believe every child deserves a future where they can thrive. Join us in breaking barriers and building an inclusive Ethiopia! 📩 Want to partner with us or learn more? Let’s connect!