Our Mission
To provide education and vital support programs to individuals and families with Hermansky-Pudlak syndrome while striving for improved care and innovative research on our journey to cure. our-mission
We are a 501c3 non-profit organization founded in 1992 and incorporated in 1995.
Our Work:
To achieve this goal, the HPS Network gathers and disseminates information, promotes awareness, funds research, and provides support to our members. This keeps us actively developing educational materials, pamphlets, presentations, and articles to help both families and professionals understand the needs created by this syndrome. We maintain a contact and symptom registry to assist with informing and networking individuals, recruiting for research trials and facilitating frequent communications. We have a toll free number to provide access to support with a bilingual office ready to help.
Company Details
- Founded
- -
- Address
- One South Road, Oyster Bay,ny 11771,united States
- Industry
- Non-Profit Organizations
- Website
- http://www.hpsnetwork.org
- Keywords
- rare disease, patient advocacy, hermansky-pudlak syndrome, albinism, chediak-higashi syndrome, bleeding disorder, pulmonary fibrosis, GI, vision impairment.
- HQ
- Oyster Bay, NY
- Competitors
- Pulmonary Hypertension Association, The LAM Foundation, GENESPOIR, The British Society for Genetic Medicine (BSGM), Hermansky-Pudlak Syndrome Network, The PolG Foundation, Spatial Bio Hub, With + For Consulting, National Organization for Albinism and Hypopigmentation - NOAH, OnCall Solutions.
Hps Network Questions
Hps Network's website is http://www.hpsnetwork.org
Hps Network's LinkedIn profile is https://www.linkedin.com/company/hps-network
Hps Network's industry is
Non-profit Organizations
Hps Network's top competitors are
Pulmonary Hypertension Association,
The Lam Foundation,
Genespoir,
The British Society For Genetic Medicine (Bsgm),
Hermansky-Pudlak Syndrome Network,
The Polg Foundation,
Spatial Bio Hub,
With + For Consulting,
National Organization For Albinism And Hypopigmentation - Noah,
Oncall Solutions.
Hps Network's categories are Non-profit Organizations
Hps Network's founding year is 1992
