The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference. The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians and their support teams as well as increasing public awareness.
The JSRDF is an entirely volunteer-run non-profit foundation. We have no paid staff. We own no real estate, or office space. The heart of our operations beats with generous donations, from individuals who care deeply about our mission to serve families and children impacted daily by the challenges of living with Joubert Syndrome.
Company Details
- Employees
- 3
- Address
- Po Box #84, Spokane,wa 99210,united States
- Industry
- Non-Profit Organizations
- Website
- https://jsrdf.org/
- HQ
- Spokane, WA
Joubert Syndrome And Related Disorders Foundation Questions
Joubert Syndrome And Related Disorders Foundation's website is https://jsrdf.org/
Joubert Syndrome And Related Disorders Foundation's LinkedIn profile is https://www.linkedin.com/company/jsrdf
Joubert Syndrome And Related Disorders Foundation has
3 employees.
View email and phone details for 3
employees at Joubert Syndrome And Related Disorders Foundation.
Joubert Syndrome And Related Disorders Foundation's industry is
Non-profit Organizations
Joubert Syndrome And Related Disorders Foundation's top competitors are
Genedx,
Sociedad Española De Neurología Pediátrica,
Mieux Vivre Avec Le Syndrome De Joubert,
Sep,
Finch Genetics,
Avobis Bio.
Joubert Syndrome And Related Disorders Foundation's categories are Non-profit Organizations
