Joubert Syndrome and Related Disorders Foundation Overview
- Headquarters
- Spokane, Washington, United States
- Website
- jsrdf.org
- Industry
- Non-Profit Organizations
- Employees
- 3
About Joubert Syndrome and Related Disorders Foundation
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference. The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians and their support teams as well as increasing public awareness. The JSRDF is an entirely volunteer-run non-profit foundation. We have no paid staff. We own no real estate, or office space. The heart of our operations beats with generous donations, from individuals who care deeply about our mission to serve families and children impacted daily by the challenges of living with Joubert Syndrome.
Joubert Syndrome and Related Disorders Foundation Contact Details
- People in AeroLeads
- 2
- With contact data
- 2
- Email contacts
- 2
- 100.0% coverage
Joubert Syndrome and Related Disorders Foundation Org Chart
Sample employees and titles| Name | Title | Location | Contact |
|---|---|---|---|
| Scott Maclellan | Communications Officer at National | Ottawa, Ontario, Canada |
Email
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| Jessika Garis, Chc | Special Needs Advocate | Lithia, Florida, United States |
Email
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