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KIF1A.org is a nonprofit 501(c)(3) organization working to improve the lives of individuals and families affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find treatments and cures.
KIF1A Associated Neurological Disorder (KAND) is an ultra-rare neurodegenerative disease caused by variants in the KIF1A gene. Mutations in KIF1A cause a constellation of medical complexities, including cognitive impairment, cerebellar atrophy, ataxia, spastic paraplegia, optic nerve atrophy and epilepsy.
KIF1A.ORG works with members of the rare disease community to enable research and discovery of treatments for this generation of people living with KIF1A Associated Neurological Disorder.
Kif1A.Org's website is kif1a.org
Kif1A.Org's LinkedIn profile is https://www.linkedin.com/company/kif1a.org
Kif1A.Org has
9 employees.
View email and phone details for 9
employees at Kif1A.Org.
Kif1A.Org's industry is
Non-profit Organizations
Kif1A.Org's top competitors are
U R Our Hope,
Neucyte,
Rescue 7 Firefighters For Patients,
National Organization For Rare Disorders,
Matica Biotechnology, Inc.,
Actinium Pharmaceuticals, Inc.,
Global Genes,
Biosensics,
Sadhana Systems,
Spinex Inc..
Kif1A.Org's categories are Non-profit Organizations
Kif1A.Org's founding year is 2016
Top Kif1A.Org Employees
-
Dominique Lessard, Ph.D.
Executive Director, Kif1A.Org
Greater Burlington Area, United States, United States -
Michelle Tao
Bd Finance At Biogen
New York, New York, United States, United States5kif1a.org, mufg.jp, gmail.com, bmocm.com, actiniumpharma.com -
Valerie Morris
Registered Nurse, Rn, Bsn;…
Madison, Alabama, United States, United States -
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