The LGDA is dedicated to improving the quality of life of patients with complex lymphatic anomalies by providing patient support and education; promoting and supporting basic science and patient-centered clinical research that will improve understanding of CLAs and establish best practices for their diagnosis and management; and advocating for public policies that benefit those living with these rare lymphatic diseases.
Complex lymphatic anomalies (CLA) is an umbrella term which currently includes 4 overlapping, lymphatic-system maldevelopments resulting from somatic mutations in PIK3/mTor and RAS/MAPK signaling pathways: generalized lymphatic anomaly (GLA), kaposiform lymphangiomatosis (KLA), central conducting lymphatic anomaly (CCLA), and Gorham-Stout disease (GSD). Outdated terms for these diseases include lymphangiomatosis and lymphangiectasia.
Company Details
- Employees
- 8
- Founded
- 2007
- Address
- 7901 4th St N, St Petersburg,florida 33702,united States
- Industry
- Philanthropic Fundraising Services
- NAICS
-
Grantmaking and Giving ServicesGrantmaking FoundationsVoluntary Health OrganizationsOther Grantmaking and Giving Services
- Website
- lgdalliance.org
- Keywords
- Vascular Anomalies, Complex Lymphatic Anomalies, Rare Diseases, Gorham Disease, Generalized Lymphatic Anomalies, Gorham Stout Disease, Kaposiform Lymphangiomatosis, Central Conducting Lymphatic Anomaly, Rare Disease, rare lymphatic diseases, lymphatic malformations, CLA research, Rare Disease Research, Lymphangiomatosis, lymphatic system, vanishing bone disease, PIK3CA gene.
- HQ
- St Petersburg, Florida
- Competitors
- Myositis Support and Understanding Association, Inc. (MSU), Tour & Taxis, UCO Office of Research and Sponsored Programs, PCDH19 ALLIANCE, Buy Way Personal Finance, The Guthy-Jackson Charitable Foundation, Myositis India, HHS Office on Women’s Health, Business & Finance Solutions, GLUT1 Deficiency Foundation.
Lymphangiomatosis & Gorham's Disease Alliance (Lgda) Questions
Lymphangiomatosis & Gorham'S Disease Alliance (Lgda)'s website is lgdalliance.org
Lymphangiomatosis & Gorham'S Disease Alliance (Lgda)'s LinkedIn profile is https://www.linkedin.com/company/lgdalliance
Lymphangiomatosis & Gorham'S Disease Alliance (Lgda) has
8 employees.
View email and phone details for 8
employees at Lymphangiomatosis & Gorham'S Disease Alliance (Lgda).
Lymphangiomatosis & Gorham'S Disease Alliance (Lgda)'s industry is
Philanthropic Fundraising Services
Lymphangiomatosis & Gorham'S Disease Alliance (Lgda)'s top competitors are
Myositis Support And Understanding Association, Inc. (Msu),
Tour & Taxis,
Uco Office Of Research And Sponsored Programs,
Pcdh19 Alliance,
Buy Way Personal Finance,
The Guthy-Jackson Charitable Foundation,
Myositis India,
Hhs Office On Women’s Health,
Business & Finance Solutions,
Glut1 Deficiency Foundation.
Lymphangiomatosis & Gorham'S Disease Alliance (Lgda)'s categories are Philanthropic Fundraising Services
Lymphangiomatosis & Gorham'S Disease Alliance (Lgda)'s founding year is 2007
