Lymphangiomatosis & Gorham's Disease Alliance (LGDA)

Company Management

Lymphangiomatosis & Gorham's Disease Alliance (LGDA)

Philanthropic Fundraising Services St Petersburg, Florida, United States 8 employees

Employees: 8
Contacts: 4
Emails: 3
Phones: 1

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Lymphangiomatosis & Gorham's Disease Alliance (LGDA) Overview

Headquarters: St Petersburg, Florida, United States
Website: lgdalliance.org
Industry: Philanthropic Fundraising Services
Employees: 8
Founded: 2007
Company Email: Available in AeroLeads
NAICS: Grantmaking and Giving Services

Grantmaking Foundations

Voluntary Health Organizations

Keywords

Vascular Anomalies Complex Lymphatic Anomalies Rare Diseases Gorham Disease Generalized Lymphatic Anomalies Gorham Stout Disease Kaposiform Lymphangiomatosis Central Conducting Lymphatic Anomaly Rare Disease rare lymphatic diseases lymphatic malformations CLA research

About Lymphangiomatosis & Gorham's Disease Alliance (LGDA)

The LGDA is dedicated to improving the quality of life of patients with complex lymphatic anomalies by providing patient support and education; promoting and supporting basic science and patient-centered clinical research that will improve understanding of CLAs and establish best practices for their diagnosis and management; and advocating for public policies that benefit those living with these rare lymphatic diseases. Complex lymphatic anomalies (CLA) is an umbrella term which currently includes 4 overlapping, lymphatic-system maldevelopments resulting from somatic mutations in PIK3/mTor and RAS/MAPK signaling pathways: generalized lymphatic anomaly (GLA), kaposiform lymphangiomatosis (KLA), central conducting lymphatic anomaly (CCLA), and Gorham-Stout disease (GSD). Outdated terms for these diseases include lymphangiomatosis and lymphangiectasia.

Lymphangiomatosis & Gorham's Disease Alliance (LGDA) Contact Details

People in AeroLeads: 4
With contact data: 4
Email contacts: 3; 75.0% coverage
Phone contacts: 1; 25.0% coverage

Lymphangiomatosis & Gorham's Disease Alliance (LGDA) Org Chart

Sample employees and titles

Name	Title	Location	Contact
Lucy Ferry	Health Management Mph Candidate '25	Atlanta, Georgia, United States	Email
Lisa Klepper	Director of Patient Programs	Waxahachie, Texas, United States	Email
Tracy Milne	Lgda - Lymphangiomatosis and Gorham’s	Peterculter, Scotland, United Kingdom	Phone
Louise Murgia	Seasoned Director & Manager	Washington Dc-baltimore Area, United States	Email