NSPKU

Our goal is to support individuals and families living with (Phenylketonuria) PKU across the UK. We do this through our various activities: - Education and Research: We work closely with a Medical Advisory Panel of expert clinicians and retain a specialist dietitian. We provide reliable dietary guidance, medical information and support research. - Support: We work to assist individuals and families through all stages of their lives. We provide a telephone helpline, online advice and a colour magazine to our members. - Community: We create a supporting and caring community for people affected by PKU through our annual family conference, regional events, youth activities and social media. - Advocacy: We are the voice of people living with PKU – with government, public, industry bodies and the media to represent the issues that matter to people living with PKU.