The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association. Its membership consists of national and sub-national organisations which, in one way or another, support people living with the rare diagnosis Osteogenesis Imperfecta (OI). The OIFE was established in 1993 by six founding OI societies as a non-profit organisation and is registered as a charity in the Netherlands.
Our goals are to:
* Represent our members on an international level and be the voice of people with OI and their families
* Grow an international network between professionals, organizations, individuals and other stakeholders
* Advocate for access to competent healthcare and social support
* Encourage scientific research on OI
* Empower our members by sharing information, knowledge and best practices
* Support development of OI organizations and local support in more countries
* Guide individuals towards information, healthcare and support
Company Details
- Employees
- 8
- Founded
- -
- Address
- Etterstadkroken 5d, Oslo,oslo 0659,norway
- Industry
- Wellness And Fitness Services
- NAICS
-
Fitness and Recreational Sports Centers
- Website
- oife.org
- Keywords
- Osteogenesis Imperfecta, Rare Diseases, Patient engagement, Brittle Bone Disease, Rare Bone Diseases, Rare Bone Disorders, Patient involvement.
- HQ
- Oslo, Oslo
- Competitors
- Osteogenesis Imperfecta Foundation, Brittle Bone Society, Nationella Funktionen Sällsynta Diagnoser, Ultragenyx, Care4BrittleBones Foundation, MeP Edizioni - Medico e Paziente, ERN BOND - European Reference Network on Rare Bone Diseases, As.It.O.I. - Associazione Italiana Osteogenesi Imperfetta, Mereo BioPharma, Dansk Forening for Osteogenesis Imperfecta - The Danish Osteogenesis Imperfecta Society.
Osteogenesis Imperfecta Federation Europe Questions
Osteogenesis Imperfecta Federation Europe's website is oife.org
Osteogenesis Imperfecta Federation Europe's LinkedIn profile is https://no.linkedin.com/company/oife
Osteogenesis Imperfecta Federation Europe has
8 employees.
View email and phone details for 8
employees at Osteogenesis Imperfecta Federation Europe.
Osteogenesis Imperfecta Federation Europe's industry is
Wellness and Fitness Services
Osteogenesis Imperfecta Federation Europe's top competitors are
Osteogenesis Imperfecta Foundation,
Brittle Bone Society,
Nationella Funktionen Sällsynta Diagnoser,
Ultragenyx,
Care4brittlebones Foundation,
Mep Edizioni - Medico E Paziente,
Ern Bond - European Reference Network On Rare Bone Diseases,
As.it.o.i. - Associazione Italiana Osteogenesi Imperfetta,
Mereo Biopharma,
Dansk Forening For Osteogenesis Imperfecta - The Danish Osteogenesis Imperfecta Society.
Osteogenesis Imperfecta Federation Europe's categories are Wellness and Fitness Services
Osteogenesis Imperfecta Federation Europe's founding year is 1993
