With innovation and better care, those with rare disease are living longer, and healthier lives than ever before. While there are many supportive programs and camps intended for children and their families, it is often those teens and young adults aging out of the programs who need them the most.
One Rare was founded by a mother of two young adults with Duchenne Muscular Dystrophy after significant frustration with the lack of recreational, social and educational activities available to foster independence in her sons and others like them.
The goal of One Rare will be an organization staffed by young adults with rare disease and their supporters, serving young adults with rare disease. This provides the dual benefit of providing employment experience and opportunities to a population that is often overlooked, and support to the same community.
Company Details
- Employees
- 7
- Address
- Newton, Ma 02461, Us
- Industry
- Individual And Family Services
- NAICS
-
Individual and Family ServicesChild and Youth ServicesOther Individual and Family Services
- Website
- onerare.org
- Keywords
- Newton.
- HQ
- Newton, MA
One Rare Questions
One Rare's website is onerare.org
One Rare's LinkedIn profile is https://www.linkedin.com/company/one-rare
One Rare has
7 employees.
View email and phone details for 7
employees at One Rare.
One Rare's industry is
Individual and Family Services
One Rare's top competitors are
Freestand Sampling,
Simons Searchlight,
Myrobalan Therapeutics,
Gobbl (Ex Onerare),
Canary Advisors®,
Everylife Foundation For Rare Diseases,
Not Just Patients,
Bridgebio,
Patients Rising,
Patient Authentic.
One Rare's categories are Individual and Family Services
