PKS Italia Aps is steadfastly dedicated to illuminating the journey for individuals and families impacted by Pallister-Killian Syndrome (PKS) through providing crucial support, fostering research, and championing advocacy. Established as the pioneering European association, our mission spirals into facilitating tangible resources, pioneering research initiatives, and advocating for optimized healthcare to enhance the quality of life for every individual affected by PKS. We envision a future where every individual with PKS is empowered to live a fulfilling life. Collaboratively, with families, medical professionals, and the broader community, we weave a supportive network, navigating through the challenges of PKS, propelling awareness, and bridging the gap between research and care, thereby paving the path toward hope and tangible advancements in understanding and managing PKS.
The cornerstones of PKS Italia's work are:
- Championing and supporting research, diagnosis, medical care, and potential treatments: spearheading the organization of medical conferences, fostering the training of specialized professionals, establishing research scholarships, and presenting awards for research internships.
- Heightening awareness of PKS within the medical-scientific community and the general populace. Its strategy includes the dissemination of information on the syndrome through diverse mediums, supplemented by charitable events.
- Developing impactful and effective fundraising strategies to finance its vision and mission.
- Facilitating communication, information exchange, and mutual support among PKS families, manifesting through virtual meetings, in-person gatherings, 'Family Days', and other significant events.
- Providing financial aid in documented cases, supporting treatments or the procurement of specialized aids.
Company Details
- Employees
- 2
- Founded
- -
- Industry
- Non-Profit Organizations
- Website
- http://www.pksitalia.org
- Keywords
- Patient Association, No Profit, Fundraising, Charity Management, Education, Support, Research.
- Competitors
- Sadhu, Mowat-Wilson Syndrome Foundation, Associazione Mercurio, FAVO - Federazione italiana delle Organizzazioni di Volontariato in Oncologia, Federazione Cure Palliative, ENTE NAZIONALE per l'INTELLIGENZA ARTIFICIALE - E.N.I.A.®, Uniser Soc. Coop., ACMT-Rete per la Malattia di Charcot-Marie-Tooth, Il Post, MyPolis.
Pks Italia Aps Questions
Pks Italia Aps's website is http://www.pksitalia.org
Pks Italia Aps's LinkedIn profile is https://www.linkedin.com/company/pks-italia-aps
Pks Italia Aps has
2 employees.
View email and phone details for 2
employees at Pks Italia Aps.
Pks Italia Aps's industry is
Non-profit Organizations
Pks Italia Aps's top competitors are
Sadhu,
Mowat-Wilson Syndrome Foundation,
Associazione Mercurio,
Favo - Federazione Italiana Delle Organizzazioni Di Volontariato In Oncologia,
Federazione Cure Palliative,
Ente Nazionale Per L'intelligenza Artificiale - E.n.i.a.®,
Uniser Soc. Coop.,
Acmt-Rete Per La Malattia Di Charcot-Marie-Tooth,
Il Post,
Mypolis.
Pks Italia Aps's categories are Non-profit Organizations
Pks Italia Aps's founding year is 2011
