Post Fata Resurgo ETS

Patients Advocacy Organisation for people with ALS - Amyotrophic Lateral Sclerosis (aka MND - Motor Neuron Disease). We want to raise awareness among our leaders and our institutions in order to get immediate action that saves the lives of people with such a horrific neurodegenerative disease. We want Medicines Regulatory Agencies to apply fair flexibility to offer early access to investigational drugs. We believe it is necessary to set up Government Research Programs in the fight to ALS and that all Research Centers create networks to share skills and experiences to speed up the discovery of a definitive cure.