Pspa

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PSPA is a national charity offering support and information to people living with the neurological diseases Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), while funding research into the conditions. PSPA relies entirely on voluntary donations. Both of these conditions are caused by the progressive death of nerve cells in the brain, leading to difficulty with balance, movement, cognition, vision, speech and swallowing. At least 5,000 people are living with PSP & CBD in the UK at any one time, but this number could be more than 10,000 as many are misdiagnosed with other conditions. There is no cure and there are no effective treatments for these conditions, but therapies can help manage symptoms. Thanks to PSPA, no one need face a diagnosis of PSP or CBD alone. Our helpline can be contacted on 0300 0110 122, helpline@pspassociation.org.uk

Company Details

Employees
64
Founded
-
Address
Margaret Powell House, 415a Midsummer Boulevard,united Kingdom
Industry
Non-Profit Organizations
HQ
Milton Keynes, Buckinghamshire
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News

Rare disease charity announces new CEO - Milton Keynes Citizen

Rare disease charity announces new CEO Milton Keynes Citizen

Support group for people with rare brain conditions launched in Bradford - Telegraph and Argus

Support group for people with rare brain conditions launched in Bradford Telegraph and Argus

Charity launches appeal to increase research into PSP & CBD - Milton Keynes Citizen

Charity launches appeal to increase research into PSP & CBD Milton Keynes Citizen

PSPA support group helps families in Bradford - InYourArea

PSPA support group helps families in Bradford InYourArea

Rare causes of dementia - Alzheimer's Research UK

Rare causes of dementia Alzheimer's Research UK

Why challenging diagnosis led to Wrexham family donating father's brain for research - Wrexham Leader

Why challenging diagnosis led to Wrexham family donating father's brain for research Wrexham Leader

James HENDERSON Obituary (2021) - Edinburgh, City of Edinburgh - The Scotsman - Legacy obituary

James HENDERSON Obituary (2021) - Edinburgh, City of Edinburgh - The Scotsman Legacy obituary

Rare causes of dementia - Alzheimer's Research UK

Rare causes of dementia Alzheimer's Research UK

Births, marriages and deaths: September 14, 2021 - The Times

Births, marriages and deaths: September 14, 2021 The Times

Death Notice Sheridan Harden Hillis - Funeral Times

Death Notice Sheridan Harden Hillis Funeral Times

Ricky Gardiner: Iggy Pop pays tribute to Edinburgh-born guitarist who played with him and David Bowie - Edinburgh News

Ricky Gardiner: Iggy Pop pays tribute to Edinburgh-born guitarist who played with him and David Bowie Edinburgh News

PSPA Support Group in Shropshire relaunched - Shropshire Live

PSPA Support Group in Shropshire relaunched Shropshire Live

Ken EDWARDS Obituary (2021) - Stamford, Lincolnshire - Stamford Mercury - Legacy obituary

Ken EDWARDS Obituary (2021) - Stamford, Lincolnshire - Stamford Mercury Legacy obituary

Shropshire couple raising awareness over husband's rare terminal illness - Shropshire Star

Shropshire couple raising awareness over husband's rare terminal illness Shropshire Star

Muddy Meets: Raynor Winn, author - Cornwall | Muddy Stilettos

Muddy Meets: Raynor Winn, author Cornwall | Muddy Stilettos

Robert Dallinger - Wokingham.Today

Robert Dallinger Wokingham.Today

Retired teacher who walks to slow down her dementia eyes trek round coast of Wales - The Mirror

Retired teacher who walks to slow down her dementia eyes trek round coast of Wales The Mirror

Support for people affected by dementia - Alzheimer's Research UK

Support for people affected by dementia Alzheimer's Research UK

Radio 4 Appeal highlights urgent need for research into rare brain disease - Milton Keynes Citizen

Radio 4 Appeal highlights urgent need for research into rare brain disease Milton Keynes Citizen

Leading podcast to feature MK local's rare diagnosis - Milton Keynes Citizen

Leading podcast to feature MK local's rare diagnosis Milton Keynes Citizen

The latest death notices across Carmarthenshire as families remember loved ones - Wales Online

The latest death notices across Carmarthenshire as families remember loved ones Wales Online

Milton Keynes mum of five will lose the ability to function but still vows to help others - Milton Keynes Citizen

Milton Keynes mum of five will lose the ability to function but still vows to help others Milton Keynes Citizen

Woman misdiagnosed with Parkinson's Disease speaks about neurological condition - The York Press

Woman misdiagnosed with Parkinson's Disease speaks about neurological condition The York Press

Colleagues lament the loss of long serving county councillor - The Redditch Standard

Colleagues lament the loss of long serving county councillor The Redditch Standard

'Legend' teacher who taught thousands of pupils in 40-year career loses fight to rare brain disease - Teesside Live

'Legend' teacher who taught thousands of pupils in 40-year career loses fight to rare brain disease Teesside Live

Every death notice and funeral announcement made in Gloucestershire in the last week - Gloucestershire Live

Every death notice and funeral announcement made in Gloucestershire in the last week Gloucestershire Live

Death notices and funeral announcements from the Hull Daily Mail this week - Hull Daily Mail

Death notices and funeral announcements from the Hull Daily Mail this week Hull Daily Mail

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