Pulmonary Hypertension Knowledge Sharing Platform

In the past 30 years, enormous progress has been made in understanding and treating pulmonary hypertension. From groundbreaking therapies to expert centers and clinical guidelines, the landscape of care has transformed. Patients and advocates worldwide have had an active role in this transformation and their efforts have led to impactful initiatives in awareness, advocacy, and education. A wealth of valuable information about pulmonary hypertension is now available but is scattered across countless websites, journals, reports, and publications worldwide, lacking a unified and systematic approach to collecting a This is the rationale behind the creation of the Pulmonary Hypertension Knowledge Sharing Platform (PH-KSP): an inclusive, collaborative hub designed to collect and disseminate knowledge relevant to pulmonary hypertension. Developed by a team comprising members from the Alliance for Pulmonary Hypertension (AfPH), a registered non-profit patient association based in Brussels, as well as pulmonary hypertension patients, family members, and experts in various fields, the PH-KSP aims to provide a central repository for information exchange. It features a comprehensive collection of resources in various formats and provides up-to-date news and events relevant to the community. As a dynamic and interactive platform, the PH-KSP is constantly evolving and welcomes your input to shape its future. Your suggestions, improvements, and feedback are essential in ensuring its relevance and usefulness. Join us on this transformative journey and together, we can make the PH-KSP a powerful resource for all. We are entirely volunteer-driven, fueled by a passion for supporting the pulmonary hypertension community.