Radeep Network

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RADeep (Rare Anaemia Disorders European Epidemiological Platform) is a GDPR-compliant patient registry launched in 2017. It centralizes data from referral centres across multiple countries, including national and local registries, to support research, surveillance, and treatment access for rare anaemias in Europe. It enables standardized, cross-border clinical data sharing. RADeep is endorsed by the European Rare Blood Disorders Platform (ENROL), the official registry framework of the European Reference Network on rare hematological diseases (ERN-EuroBloodNet), and by the European Haematology Association (EHA).
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