Rare Bird Foundation
Company

Rare Bird Foundation

Non-Profit Organizations Hosted a Patient Listening Session (Pls) with Representatives of the Mef2c Haploinsufficiency Syndrome (Mchs) Community. This Milestone Achievement Marked the Fda’s First Engagement with the Mchs Community. Seven Parents of Children with Mchs Shared Their First-hand Experiences with This Disease and Its Impact on Everyday Life. Thank You to the Caregivers That Shared Their Testimonials 1 employees
Employees
1
Contacts
1
Emails
1
www.rare-bird.org LinkedIn

Rare Bird Foundation Overview

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Hosted a Patient Listening Session (Pls) with Representatives of the Mef2c Haploinsufficiency Syndrome (Mchs) Community. This Milestone Achievement Marked the Fda’s First Engagement with the Mchs Community. Seven Parents of Children with Mchs Shared Their First-hand Experiences with This Disease and Its Impact on Everyday Life. Thank You to the Caregivers That Shared Their Testimonials
Website
www.rare-bird.org
Industry
Non-Profit Organizations
Employees
1
Keywords
RDLR Architects

About Rare Bird Foundation

Dedicated to advancing research that improves the understanding & development of therapeutics for MEF2C Haploinsufficiency Syndrome (MCHS)

Rare Bird Foundation Contact Details

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Rare Bird Foundation Org Chart

Sample employees and titles
Name Title Contact
Hiba Bhatty Architect - Co-founder - Keynote Speaker
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