Rare Connection inc
Public Health
Beaverton, Oregon, United States
6 employees
- Employees
- 6
Rare Connection inc Overview
- Headquarters
- Beaverton, Oregon, United States
- Website
- rareconnection.org
- Industry
- Public Health
- Employees
- 6
- Founded
- 2024
- NAICS
-
Administration of Public Health Programs
Keywords
About Rare Connection inc
Rare Connection is a nonprofit based on a podcast I do on my YouTube Channel Rare Chef. It is recorded live and then transferred to BuzzSprout where it is transferred into pushed to 17 different audio stations. The mission of Rare Connection is to Connect rare disease patients which I am doing through email and a facebook group right now by the same name. Educate Medical professionals and the public which I am doing through the podcast right now and I hope to collaborate with a medical professinal to offer continuing education credits for listening to the podcast. Lastly I want to find and fund clinical trials for the 95% of rare conditions that lack FDA approved treatment. Clinical trials can be found at clinicaltrials.gov. I need board members before I can make this official and file for the 501c3 making donations tax deductible.
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