Rare Voices Australia (RVA) is Australia’s national peak body for Australians living with a rare disease. We provide a strong, common voice to advocate for health policy and a health care system that works for people living with a rare disease. Our person-centred focus sees RVA working with key stakeholders including: people living with a rare disease/advocates, key peak bodies, governments, researchers, clinicians and industry.
On 26 February 2020, the National Strategic Action Plan for Rare Diseases (the Action Plan) was launched by the Minister for Health. RVA led the collaborative development of the Action Plan and is now leading its collaborative implementation.
For more information, please visit our website: rarevoices.org.au
View RVA's Privacy Statement: rarevoices.org.au/privacy/
Company Details
- Employees
- 27
- Founded
- -
- Industry
- Non-Profit Organizations
- Website
- rarevoices.com.au
- Keywords
- are needed besides medical care..
- Competitors
- Rare Disease Day, CF Together, Genetic Alliance Australia, Human Genetics Society of Australasia - HGSA, Lort Smith, Patient Voice Initiative, Australian Government Department of Health, Disability and Ageing, Syndromes Without A Name (SWAN) Australia, Distinctive Options, CBE Pure Solutions.
Rare Voices Australia Questions
Rare Voices Australia's website is rarevoices.com.au
Rare Voices Australia's LinkedIn profile is https://au.linkedin.com/company/rare-voices-australia
Rare Voices Australia has
27 employees.
View email and phone details for 27
employees at Rare Voices Australia.
Rare Voices Australia's industry is
Non-profit Organizations
Rare Voices Australia's top competitors are
Rare Disease Day,
Cf Together,
Genetic Alliance Australia,
Human Genetics Society Of Australasia - Hgsa,
Lort Smith,
Patient Voice Initiative,
Australian Government Department Of Health, Disability And Ageing,
Syndromes Without A Name (Swan) Australia,
Distinctive Options,
Cbe Pure Solutions.
Rare Voices Australia's categories are Non-profit Organizations
Rare Voices Australia's founding year is 2012
