Rett Syndrome Europe

Rett Syndrome Europe is a non-profit organization that serves the interests of families across Europe affected by Rett syndrome, a rare genetic disorder that affects mainly females and causes severe physical and mental disabilities. The organization was established in 1994. Rett Syndrome Europe aims to make Rett syndrome better known to the public, professionals, carergivers, and those who are directly concerned in all European countries. It also strives to improve communication within the European Rett community and promote the interests of people with Rett Syndrome and their families as a representative European organization.