Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia. Our vision is to find a cure for Duchenne & Becker muscular dystrophy.
Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls. It is the most common and most severe form of muscular dystrophy and is also known as dystrophinopathy, which refers to a mutation in the dystrophin gene, with a similar milder form of the condition called Becker muscular dystrophy.
Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aims to make a difference in the lives of all living with Duchenne and Becker
muscular dystrophy across Australia.
Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the condition.
Company Details
- Employees
- 9
- Founded
- -
- Address
- 3/570 New Canterbury Rd, Hurlstone Park,new South Wales 2193,australia
- Industry
- Non-Profit Organizations
- Website
- saveoursons.org.au
- Keywords
- North Strathfield.
- HQ
- Hurlstone Park, New South Wales
Save Our Sons Duchenne Foundation Questions
Save Our Sons Duchenne Foundation's website is saveoursons.org.au
Save Our Sons Duchenne Foundation's LinkedIn profile is https://au.linkedin.com/company/save-our-sons-inc
Save Our Sons Duchenne Foundation has
9 employees.
View email and phone details for 9
employees at Save Our Sons Duchenne Foundation.
Save Our Sons Duchenne Foundation's industry is
Non-profit Organizations
Save Our Sons Duchenne Foundation's top competitors are
Ishaks,
Action Duchenne,
Chemist Warehouse,
Destroy Duchenne,
Dawkins Occhiuto,
Satellos Bioscience,
One Stop Rehab,
Drawnames (Lootjestrekken.nl),
Cooper Rice-Brading Foundation,
Affective Care.
Save Our Sons Duchenne Foundation's categories are Non-profit Organizations
Save Our Sons Duchenne Foundation's founding year is 2008
