SCN2A Australia

SCN2A Patient Advocacy Group. OUR MISSION WORK LOCALLY, CONNECT GLOBALLY. -Connect Australian families and provide information and resources -Link with and work directly with Australian researchers, clinicians and professional bodies. -Work with researchers around the globe to ensure Australian families have access to research projects and any potential treatments. -Work with other SCN2A bodies to co-ordinate activities world wide, including awareness raising. -Raise awareness of SCN2A in Australia both with the public and health professionals -Promote fundraising for SCN2a in Australia -Work with relevant government departments and rare disease entities ensuring our work aligns with providing access to treatments when they become available.