About SCTPN
The Sickle Cell Thalassemia Patients Networks, Inc. (SCTPN) began as an adult support group in 1985. The organization was registered in New York State as a not-for-profit incorporation In April 15, 1992 and received its tax-exemption status for the IRS shortly thereafter.
MISSION
SCTPN is dedicated to improving the quality of life for individuals and families living with sickle cell disease, thalassemia, and other inherited blood disorders.
Through education, advocacy, and support interactions. The organization seeks to diminish the negative social, psychological, and economic impact these inherited blood disorders have on our community.
Programs
POES Forums – Public Outreach & Education Services, to increase awareness, understanding, and empathy for children and adults living with sickle cell disease (SCD). POES also facilitates training for health care professionals (HCP) to help them acquire a better understanding of this metabolic disorder.
Undergraduate Scholarship Program – Providing financial assistance to young adults living with SCD interested in advancing their education. Scholarship recipients receive their awards each year of their undergraduate studies.
Adolescent Transition Program – SCTPN is partnering with Montefiore Medical Center, Bronx, NY, to develop and improve the Transition process for adolescent and young adults with inherited blood disorders from pediatric to adult medical care. This program is funded by a grant from PCORI.
Care Coordination Program – The Care Coordination Program is funded by a HRSA (Human Resource Services Administration) grant Administered by the Sickle Cell Disease Association of America (SCDAA) to assist Community-based Organizations (CBO) across the country with providing outreach services to individuals living with SCD, and their families. SCTPN can assist people with finding a qualified physician, a Medical Home, and other need services.
Company Details
- Employees
- 11
- Founded
- -
- Address
- 1139 Saint Johns Pl, Brooklyn,ny - New York 11213-2617,united States
- Industry
- Non-Profit Organizations
- Website
- http://www.sctpn.net
- HQ
- Brooklyn, NY - New York
- Competitors
- COOLEYS ANEMIA FOUNDATION INC, e-SAMRIDH, THALASSEMIA FRANDE MEDITERRANEE, Thalassaemia International Federation (TIF), Thalassemia Patients Advocacy Group, Blood Warriors, Cooley's Anemia Foundation, SICKLE CELL-THALASSEMIA PATIENTS NETWORKS INC, Parents for the cure of Sickle Cell Disease and Beta-Thalassemia, Galaxy Foundation.
Sickle Cell Thalassemia Patients Networks Questions
Sickle Cell Thalassemia Patients Networks's website is http://www.sctpn.net
Sickle Cell Thalassemia Patients Networks's LinkedIn profile is https://www.linkedin.com/company/sicklecellthalassemiapatientsnetworks
Sickle Cell Thalassemia Patients Networks has
11 employees.
View email and phone details for 11
employees at Sickle Cell Thalassemia Patients Networks.
Sickle Cell Thalassemia Patients Networks's industry is
Non-profit Organizations
Sickle Cell Thalassemia Patients Networks's top competitors are
Cooleys Anemia Foundation Inc,
E-Samridh,
Thalassemia Frande Mediterranee,
Thalassaemia International Federation (Tif),
Thalassemia Patients Advocacy Group,
Blood Warriors,
Cooley's Anemia Foundation,
Sickle Cell-Thalassemia Patients Networks Inc,
Parents For The Cure Of Sickle Cell Disease And Beta-Thalassemia,
Galaxy Foundation.
Sickle Cell Thalassemia Patients Networks's categories are Non-profit Organizations
Sickle Cell Thalassemia Patients Networks's founding year is 1992
