Established in 2017 under the parent body Thalassemics India, Thalassemia Patients Advocacy Group (TPAG) is an advocacy group that focuses on protecting and promoting overall interests of the thalassemic community in India.
Strongly aligned with The Rights of Persons with Disability Act, 2016 in India and Sustainable Development Goal No. 3 ‘Ensure healthy lives and promote wellbeing for all at all ages’; TPAG strives to work for educating and advocating the effecting practices led by policy level changes in India. TPAG believes in the power of advocacy to bring out monumental change in case of a life-threatening disease like thalassemia.
The uniqueness of TPAG lies in the fact that it was established by seven patients of thalassemia major in the year 2017. The group is spearheaded by highly qualified working professionals such as lawyers, engineers and corporate professionals who want to bring about a change to make India thalassemia free by protecting and furthering the rights of the patients, prevention and management of thalassemia through promotion of best practices.
TPAG has been working with a multi-pronged approach to address policy gaps, infrastructural issues and systematic challenges for prevention and management of Thalassemia.
TPAG represented the case of thalassemics in India and policy recommendations to Shri. Harsh Vardhan, Union Minister of Health, Ministry of Health and Family Welfare in July 2019. The policy recommendations were preceded by a dialogue and deliberation on the critical issues related to care, management, and prevention of Thalassemia in India.
Mission
“To Protect the overall interests of Thalassemics and prevent Thalassemia”
Vision
“To advocate for a Thalassemia Free India where all Thalassemics are cured or healthy.”
Company Details
- Founded
- -
- Address
- New Delhi, In
- Industry
- Non-Profit Organizations
- Website
- http://thalassemiapag.org
- Keywords
- Representative jobs.
- HQ
- New Delhi
- Competitors
- Bangladesh Thalassemia Foundation, SICKLE CELL-THALASSEMIA PATIENTS NETWORKS INC, Thalassemia Care and Research Foundation, Cooley's Anemia Foundation, COOLEYS ANEMIA FOUNDATION INC, Dr Santosh Kumar Pediatrics Hematologist & oncologist, THALASSEMIA FRANDE MEDITERRANEE, Parents for the cure of Sickle Cell Disease and Beta-Thalassemia, French Federation for Sickle Cell and Thalassemia patients' organizations, Sickle Cell Thalassemia Patients Networks.
Thalassemia Patients Advocacy Group Questions
Thalassemia Patients Advocacy Group's website is http://thalassemiapag.org
Thalassemia Patients Advocacy Group's LinkedIn profile is https://in.linkedin.com/company/pagthals
Thalassemia Patients Advocacy Group's industry is
Non-profit Organizations
Thalassemia Patients Advocacy Group's top competitors are
Bangladesh Thalassemia Foundation,
Sickle Cell-Thalassemia Patients Networks Inc,
Thalassemia Care And Research Foundation,
Cooley's Anemia Foundation,
Cooleys Anemia Foundation Inc,
Dr Santosh Kumar Pediatrics Hematologist & Oncologist,
Thalassemia Frande Mediterranee,
Parents For The Cure Of Sickle Cell Disease And Beta-Thalassemia,
French Federation For Sickle Cell And Thalassemia Patients' Organizations,
Sickle Cell Thalassemia Patients Networks.
Thalassemia Patients Advocacy Group's categories are Non-profit Organizations
Thalassemia Patients Advocacy Group's founding year is 2017
