Sickle Cell Disease is the most common genetic disorder worldwide. In France, 22 000 patients are affected by this red blood cell disorder. Despite being a different disorder, Bêta Thalassaemia affects the same gene and requires the same expertise to be managed. Created in 1991, SOS GLOBI is one of the oldest patients' groups supporting and advocating for Sickle Cell and Thalassaemia patients in France. In 2006, this local patients group became the national federation for Sickle Cell Disease and Thalassaemia groups in order to bring the patients' voice further. We are involved at each level: from the healthcare system organization to national policies and field support for the patients
Company Details
- Employees
- 3
- Founded
- -
- Address
- Chu Henri Mondor-Laboratoire De Biochimie-, 51 Avenue Du Maréchal De Lattre De Tassigny,france
- Industry
- Non-Profit Organization Management
- Website
- http://www.sosglobi.fr
- Keywords
- Drépanocytose, Thalassémie, Sickle Cell Disease, Thalassemia, thalassaemia, patients' advocacy, haemoglobinopathies.
- HQ
- Créteil, Val de Marne
French Federation For Sickle Cell And Thalassemia Patients' Organizations Questions
French Federation For Sickle Cell And Thalassemia Patients' Organizations's website is http://www.sosglobi.fr
French Federation For Sickle Cell And Thalassemia Patients' Organizations's LinkedIn profile is https://fr.linkedin.com/company/sos-globi
French Federation For Sickle Cell And Thalassemia Patients' Organizations has
3 employees.
View email and phone details for 3
employees at French Federation For Sickle Cell And Thalassemia Patients' Organizations.
French Federation For Sickle Cell And Thalassemia Patients' Organizations's industry is
Non-profit Organization Management
French Federation For Sickle Cell And Thalassemia Patients' Organizations's top competitors are
Drepa Infos,
Drepacare,
Drepaland,
Oxbryta Legal Helpline,
Sickle Cell And Thalassaemia Ireland,
Thalassemia Patients Advocacy Group,
European Sickle Cell Federation (Escf),
Drépa31,
Cure Thalassemia,
Centre De Recherche Et De Lutte Contre La Drépanocytose (Crld).
French Federation For Sickle Cell And Thalassemia Patients' Organizations's categories are Non-profit Organization Management
French Federation For Sickle Cell And Thalassemia Patients' Organizations's founding year is 2006
