Smith-Magenis Syndrome Australia
Research
Nelson Bay, Nsw, Au
6 employees
- Employees
- 6
Smith-Magenis Syndrome Australia Overview
- Headquarters
- Nelson Bay, Nsw, Au
- Website
- smsaustralia.org
- Industry
- Research
- Employees
- 6
- Founded
- 2016
Keywords
About Smith-Magenis Syndrome Australia
We are a small team of Australian parents with children diagnosed with Smith-Magenis Syndrome (SMS). We have come together with a common desire to drive a greater local Australian awareness, support and sense of community. Smith-Magenis Syndrome Australia is a not-for-profit organisation. The funds we raise go to support organisations and programs, such as Camp Breakaway, enhancing the lives of children with SMS and their families. PRISMS INTERNATIONAL PARTNERSHIP PROGRAM PRISMS (www.prisms.org) serve as an organisational hub for all international SMS associations and organisations, connecting information, providing collaboration for research, and promoting global awareness through cooperating partners. Smith-Magenis Syndrome Australia is a member of the PRISMS International Partnership Program. As a member, Smith-Magenis Syndrome Australia along with PRISMS, recognise that SMS is a global public health challenge that affects families around the globe. Together our organisations want to raise awareness of the common issues that people living with SMS and their families face, irrespective of where they live in the world. Global cooperation benefits the entire Smith-Magenis Syndrome community. This partnership lays the groundwork for future joint initiatives and increased transpacific collaboration for the entire SMS community.
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