Sudep Action

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SUDEP Action is a reporting and support centre for all epilepsy deaths. The charity is the leading voluntary organisation in the UK and internationally, on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy-related deaths. The charity works with leading experts to prevent deaths from epilepsy through research education and awareness. There are five key strands to our work: - Providing information on SUDEP and risk in epilepsy - Offering support when someone has died - Involving people to effect change - Sponsoring research and education to prevent further deaths - Capturing data through The Epilepsy Deaths Register www.sudep.org www.sudepactionday.org - global awareness day on 23 October 01235 772850 01235 772852 (Support line) Facebook - @SUDEPAction.org Twitter - @SUDEPAction SUDEP Action, registered charity 1164250 (England & Wales), SC047223 (Scotland). Epilepsy Bereaved (founded 1995) is part of SUDEP Action.
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Sudden Unexpected Death in Epilepsy (SUDEP) - Epilepsy Society

Sudden Unexpected Death in Epilepsy (SUDEP) Epilepsy Society

Clinical risk factors in SUDEP - Neurology® Journals

Clinical risk factors in SUDEP Neurology® Journals

Time of Day and a Ketogenic Diet Influence Susceptibility to SUDEP in Scn1aR1407X/+ Mice - Frontiers

Time of Day and a Ketogenic Diet Influence Susceptibility to SUDEP in Scn1aR1407X/+ Mice Frontiers

Antisense oligonucleotides increase Scn1a expression and reduce seizures and SUDEP incidence in a mouse model of Dravet syndrome - Science | AAAS

Antisense oligonucleotides increase Scn1a expression and reduce seizures and SUDEP incidence in a mouse model of Dravet syndrome Science | AAAS

Can We Prevent Sudden Unexpected Death in Epilepsy (SUDEP)? - Cambridge University Press & Assessment

Can We Prevent Sudden Unexpected Death in Epilepsy (SUDEP)? Cambridge University Press & Assessment

I lost my daughter at 33 and now we are turning Blackpool Tower purple in her memory - Blackpool Gazette

I lost my daughter at 33 and now we are turning Blackpool Tower purple in her memory Blackpool Gazette

Women with epilepsy need choice, not diktats, when it comes to sodium valproate - The Pharmaceutical Journal

Women with epilepsy need choice, not diktats, when it comes to sodium valproate The Pharmaceutical Journal

My son Felix was 20 when he died. Better awareness of epilepsy might have saved him - The Guardian

My son Felix was 20 when he died. Better awareness of epilepsy might have saved him The Guardian

Pharmacologic treatment and SUDEP risk - Neurology® Journals

Pharmacologic treatment and SUDEP risk Neurology® Journals

Neuroimaging of Sudden Unexpected Death in Epilepsy (SUDEP): Insights From Structural and Resting-State Functional MRI Studies - Frontiers

Neuroimaging of Sudden Unexpected Death in Epilepsy (SUDEP): Insights From Structural and Resting-State Functional MRI Studies Frontiers

TAU ablation in excitatory neurons and postnatal TAU knockdown reduce epilepsy, SUDEP, and autism behaviors in a Dravet syndrome model - Science | AAAS

TAU ablation in excitatory neurons and postnatal TAU knockdown reduce epilepsy, SUDEP, and autism behaviors in a Dravet syndrome model Science | AAAS

Type, Etiology, and Duration of Epilepsy as Risk Factors for SUDEP - Neurology® Journals

Type, Etiology, and Duration of Epilepsy as Risk Factors for SUDEP Neurology® Journals

Interictal EEG and ECG for SUDEP Risk Assessment: A Retrospective Multicenter Cohort Study - Frontiers

Interictal EEG and ECG for SUDEP Risk Assessment: A Retrospective Multicenter Cohort Study Frontiers

Influence of Risk Factor Combinations on Incidence Rates of SUDEP - Neurology® Journals

Influence of Risk Factor Combinations on Incidence Rates of SUDEP Neurology® Journals

Antiseizure medication and SUDEP – a need for unifying methodology in research - Frontiers

Antiseizure medication and SUDEP – a need for unifying methodology in research Frontiers

Automated real-time detection of tonic-clonic seizures using a wearable EMG device - Neurology® Journals

Automated real-time detection of tonic-clonic seizures using a wearable EMG device Neurology® Journals

The mechanism of sudden unexpected death in epilepsy: A mini review - Frontiers

The mechanism of sudden unexpected death in epilepsy: A mini review Frontiers

Nocturnal supervision and SUDEP risk at different epilepsy care settings - Neurology® Journals

Nocturnal supervision and SUDEP risk at different epilepsy care settings Neurology® Journals

Analysis of forensic autopsy cases associated with epilepsy: Comparison between sudden unexpected death in epilepsy (SUDEP) and not-SUDEP groups - Frontiers

Analysis of forensic autopsy cases associated with epilepsy: Comparison between sudden unexpected death in epilepsy (SUDEP) and not-SUDEP groups Frontiers

Seizure Clusters, Seizure Severity Markers, and SUDEP Risk - Frontiers

Seizure Clusters, Seizure Severity Markers, and SUDEP Risk Frontiers

How can nurses help reduce the risk of sudden death in young people with epilepsy? - RCNi

How can nurses help reduce the risk of sudden death in young people with epilepsy? RCNi

My son has epilepsy. Every day, I brace myself to find him dead - The Times

My son has epilepsy. Every day, I brace myself to find him dead The Times

The NHS is failing epilepsy patients Sufferers are being denied key drugs - UnHerd

The NHS is failing epilepsy patients Sufferers are being denied key drugs UnHerd

For Jessica, let’s do everything we can to stop epilepsy deaths - Camden New Journal

For Jessica, let’s do everything we can to stop epilepsy deaths Camden New Journal

Cameron Boyce parents share grief of his death from epilepsy - Metro.co.uk

Cameron Boyce parents share grief of his death from epilepsy Metro.co.uk

Parents arrive on holiday to discover daughter has died making 'simple' mistake - The Mirror

Parents arrive on holiday to discover daughter has died making 'simple' mistake The Mirror

Charity founder warns of hidden risks for epileptics after husband's death at 27 - Oxford Mail

Charity founder warns of hidden risks for epileptics after husband's death at 27 Oxford Mail

Tributes pour in for young Hamilton woman as the Town House turns purple for Epilepsy Awareness Day - Daily Record

Tributes pour in for young Hamilton woman as the Town House turns purple for Epilepsy Awareness Day Daily Record

Family of tragic Greengairs teen to jump out of plane to raise funds for charity - Daily Record

Family of tragic Greengairs teen to jump out of plane to raise funds for charity Daily Record

Family and friends of Crewe teen who died raise awareness of epilepsy dangers - Cheshire Live

Family and friends of Crewe teen who died raise awareness of epilepsy dangers Cheshire Live

My daughter had booked a plane ticket so we could spend my 60th together - but days later she was dead - Liverpool Echo

My daughter had booked a plane ticket so we could spend my 60th together - but days later she was dead Liverpool Echo

Pair thank woman for helping raise awareness about epilepsy after her daughter's death - The Bury Times

Pair thank woman for helping raise awareness about epilepsy after her daughter's death The Bury Times

Newsagent aids epilepsy charity - Bordon Herald

Newsagent aids epilepsy charity Bordon Herald

'My heart is broken' - mum’s devastation after sudden death of daughter, 18 - Lincolnshire Live

'My heart is broken' - mum’s devastation after sudden death of daughter, 18 Lincolnshire Live

Family left fuming after mum has to clean dog poo off daughter’s grave - Lincolnshire Live

Family left fuming after mum has to clean dog poo off daughter’s grave Lincolnshire Live

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