Tempo Zero ODV

TempoZero is a non-profit organization dedicated to the fight against Lafora disease, a rare and devastating form of progressive myoclonic epilepsy that primarily affects children and adolescents. Founded with the goal of accelerating scientific progress toward a cure, TempoZero is committed to actively supporting medical research and creating a network of support for the families involved. Our Mission: TempoZero is driven by a deep determination to eliminate time as an obstacle for patients affected by rare diseases like Lafora. Every second lost can mean a worsening of the patient’s condition, which is why the association works tirelessly to fund innovative clinical studies and therapeutic advancements. What We Do: • Support for scientific research: TempoZero collaborates with top researchers and medical institutions worldwide, raising funds to finance crucial projects in the search for treatments and cures for Lafora disease. • Advocacy and awareness: The association works relentlessly to raise awareness about Lafora disease, engaging institutions, medical communities, and the public to improve early diagnosis, access to care, and the quality of life for patients. • Support for families: TempoZero serves as a lifeline for families affected by the disease, providing emotional support, up-to-date medical information, and connections with other patients and caregivers. • Fundraising: Through events, campaigns, and donations, TempoZero raises essential funds to accelerate clinical trials and support the most promising research initiatives. The association has successfully built an international network of donors who share the same vision: a future without Lafora. Our Impact: Thanks to its tireless work and collaboration with doctors and researchers worldwide, TempoZero has already made significant contributions to the funding of key research projects. The association has built a strong reputation for its transparency, seriousness, and ability to unite people