United Leukodystrophy Foundation Overview
- Headquarters
- Dekalb, Illinois, United States
- Website
- ulf.org
- Industry
- Fundraising
- Employees
- 12
- Founded
- 1983
- Company Email
- Available in AeroLeads
- NAICS
-
All Other Business Support Services
Keywords
About United Leukodystrophy Foundation
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to providing patients and their families with information about the disease and with assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for healthcare providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Leukodystrophies make up a group of genetic, nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted. The ULF is supported solely by donations.
United Leukodystrophy Foundation Contact Details
- People in AeroLeads
- 4
- With contact data
- 3
- Email contacts
- 3
- 75.0% coverage
- Phone contacts
- 3
- 75.0% coverage
United Leukodystrophy Foundation Org Chart
Sample employees and titles| Name | Title | Location | Contact |
|---|---|---|---|
| Margaret Mcintyre, Mdm | Insights - Ideation - Innovation | Chicago, Illinois, United States |
Email
Phone
|
| Nicholas Buck | VP, Principal Analyst & Executive | Greenwich, Connecticut, United States |
Email
Phone
|
| Troy Lund | Physician-scientist - Consultant - Cell | Minneapolis, Minnesota, United States |
View
|
| Amber N. Freed | Curing Rare Diseases | Frisco, Texas, United States |
Email
Phone
|
Employees by Management Level
Individual contributor
3 profiles
VP / Head
1 profile
Associate / junior
1 profile
Compare Similar Companies to United Leukodystrophy Foundation
PALS SkyHope
Non-Profit Organizations
Uplifting Athletes
Philanthropic Fundraising Services
International Waldenstrom's Macroglobulinemia Foundation (IWMF)
Philanthropic Fundraising Services
Platelet Disorder Support Association - PDSA
Non-Profit Organizations
MitoAction
Philanthropy
Facial Pain Association
Non-Profit Organizations
HypoPARAthyroidism Association
Non-Profit Organizations
KBG Foundation
Civic And Social Organizations
Maternal Alloimmunization Foundation
Non-Profit Organizations
Rosenau Family Research Foundation
Philanthropic Fundraising Services