Each year across the UK hundreds of babies are born with a rare chromosome disorder, meaning they have extra, missing or rearranged genetic material.
Many are born sick and disabled, often unable to walk or talk and suffering life-limiting and even life-threatening conditions. Such special children can have a very demanding lifelong emotional and physical impact on their families. Rare chromosome disorders can happen to anyone yet support, information and advice for families are patchy and difficult to access.
Unique is the UK's only charity for families affected by rare chromosome disorders who have absolutely no-one else to turn to. We pick up the pieces and make a huge difference to these children and their families. Our services include a Listening Ear telephone and email helpline, a family support and matching service and information guides to specific rare chromosome disorders which are free of charge and not available anywhere else.
For more information about our work or how you can support us, please visit www.rarechromo.org
Company Details
- Employees
- 16
- Founded
- -
- Address
- The Stables,, Station Road West,united Kingdom
- Industry
- Non-Profit Organizations
- Website
- rarechromo.org
- HQ
- Oxted,, Surrey
- Competitors
- Wellcome Sanger Institute, Genetic Alliance UK, The British Society for Genetic Medicine (BSGM), NHS North West Genomic Medicine Service Alliance, Genomic AI Network, NHS North Thames Genomic Medicine Service, Julia Garnham Centre, Great Ormond Street Hospital for Children NHS Foundation Trust, Genomics Education Programme, Genomics England.
Unique - Understanding Genes And Chromosomes Questions
Unique - Understanding Genes And Chromosomes's website is rarechromo.org
Unique - Understanding Genes And Chromosomes's LinkedIn profile is https://uk.linkedin.com/company/unique---rare-chromosome-disorder-support-group
Unique - Understanding Genes And Chromosomes has
16 employees.
View email and phone details for 16
employees at Unique - Understanding Genes And Chromosomes.
Unique - Understanding Genes And Chromosomes's industry is
Non-profit Organizations
Unique - Understanding Genes And Chromosomes's top competitors are
Wellcome Sanger Institute,
Genetic Alliance Uk,
The British Society For Genetic Medicine (Bsgm),
Nhs North West Genomic Medicine Service Alliance,
Genomic Ai Network,
Nhs North Thames Genomic Medicine Service,
Julia Garnham Centre,
Great Ormond Street Hospital For Children Nhs Foundation Trust,
Genomics Education Programme,
Genomics England.
Unique - Understanding Genes And Chromosomes's categories are Non-profit Organizations
Unique - Understanding Genes And Chromosomes's founding year is 1984
