ZC4H2 Research Foundation

The ZC4H2 Research Foundation is a non-profit organization dedicated to improve the quality of life of those living with ZC4H2 Associated Rare Disorders (ZARD), through supporting medical and scientific research. ZARD is an ultra-rare neuromuscular condition, caused by a change in the ZC4H2 gene. ZARD profoundly affects the health and quality of life of those living with it. The Foundation works in partnership with the Orphan Disease Center (University of Pennsylvania). It is a registered 501(c)(3) non-profit organization in USA and in the Netherlands and operates globally. EIN:87-4577599