ZTTK SON-Shine Foundation
Non-Profit Organizations
5 employees
REGUL
- Employees
- 5
- Contacts
- 2
- Emails
- 2
- Phones
- 1
ZTTK SON-Shine Foundation Overview
- Website
- www.zttk.org
- Industry
- Non-Profit Organizations
- Employees
- 5
- Founded
- 2021
- Stock Symbol
- REGUL
Keywords
About ZTTK SON-Shine Foundation
ZTTK syndrome is an ultrarare neurodevelopmental disorder, that was only discovered in 2016. There are only 50+ patients identified in the scientific literature today and no known treatments/cures All documented cases of ZTTK syndrome are de novo mutation resulting in haploinsufficiency, with a complex and highly varied multi-system phenotype. The most prevalent symptoms include global developmental delay (gross motor, feeding, and speech delays), intellectual disability, and seizures (~50% of the known population)
ZTTK SON-Shine Foundation Contact Details
- People in AeroLeads
- 2
- With contact data
- 2
- Email contacts
- 2
- 100.0% coverage
- Phone contacts
- 1
- 50.0% coverage
ZTTK SON-Shine Foundation Org Chart
Sample employees and titles| Name | Title | Location | Contact |
|---|---|---|---|
| Ada Lio | Patient Advocacy Leader - Rare Disease Mom - Health Equity | Cambridge, Massachusetts, United States |
Email
Phone
|
| Kerry Tirrell | Co-head of Initial Listings and Etfs, Nyse Regulation | New York, United States |
Email
|
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