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OUR MISSION
KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state of the art research by bridging the gap between science and patient knowledge.
OUR VISION
A day in which each patient receives early diagnosis, state of the art care, and lives a life free of disease.
OUR MULTICENTER APPROACH
Krabbe Connect is committed to pioneering a patient-centered care model and strengthening groundbreaking research by engaging the patients and caregivers with the Krabbe research community, to ensure the needs of Krabbe patients are being voiced. This multi-center collaborative cause will bring improved science, institute data sharing, establish standards of care for all courses of treatment, provide educational videos and continuing education courses, develop an industry-standard patient registry, and be a resource for clinical trial opportunities.
Company Details
- Employees
- 7
- Founded
- -
- Address
- 13130 Aulden Ave, Rosemount,minnesota 55068,united States
- Industry
- Non-Profit Organizations
- Website
- krabbeconnect.org
- Keywords
- Probably Genetic.
- HQ
- Rosemount, Minnesota
Krabbeconnect Questions
KrabbeConnect's website is krabbeconnect.org
KrabbeConnect's LinkedIn profile is https://www.linkedin.com/company/krabbeconnect
KrabbeConnect has
7 employees.
View email and phone details for 7
employees at KrabbeConnect.
KrabbeConnect's industry is
Non-profit Organizations
KrabbeConnect's top competitors are
University Of Minnesota Department Of Pediatrics,
Genentech,
The Rare Bear Project,
Little Hercules Foundation,
Probably Genetic,
Warsaw Breakage Syndrome Foundation,
Forge Biologics,
Librarey,
Viver Health,
Ur Ventures.
KrabbeConnect's categories are Non-profit Organizations
KrabbeConnect's founding year is 2018
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