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In the past 30 years, enormous progress has been made in understanding and treating pulmonary hypertension. From groundbreaking therapies to expert centers and clinical guidelines, the landscape of care has transformed. Patients and advocates worldwide have had an active role in this transformation and their efforts have led to impactful initiatives in awareness, advocacy, and education.
A wealth of valuable information about pulmonary hypertension is now available but is scattered across countless websites, journals, reports, and publications worldwide, lacking a unified and systematic approach to collecting a
This is the rationale behind the creation of the Pulmonary Hypertension Knowledge Sharing Platform (PH-KSP): an inclusive, collaborative hub designed to collect and disseminate knowledge relevant to pulmonary hypertension. Developed by a team comprising members from the Alliance for Pulmonary Hypertension (AfPH), a registered non-profit patient association based in Brussels, as well as pulmonary hypertension patients, family members, and experts in various fields, the PH-KSP aims to provide a central repository for information exchange. It features a comprehensive collection of resources in various formats and provides up-to-date news and events relevant to the community. As a dynamic and interactive platform, the PH-KSP is constantly evolving and welcomes your input to shape its future. Your suggestions, improvements, and feedback are essential in ensuring its relevance and usefulness.
Join us on this transformative journey and together, we can make the PH-KSP a powerful resource for all. We are entirely volunteer-driven, fueled by a passion for supporting the pulmonary hypertension community.
Company Details
- Founded
- -
- Address
- Washingtonstraat 40, Elsene,brussels Region 1050,belgium
- Industry
- Education
- Website
- https://ph-ksp.com/
- Keywords
- Knowledge sharing, pulmonary hypertension, pulmonary arterial hypertension, chronic thromboembolic pulmonary hypertension, lung transplant, pulmonary endarterectomy, balloon pulmonary angioplasty, heart and lung transplant.
- HQ
- Elsene, Brussels Region
- Competitors
- ERN-LUNG - European Reference Network for rare respiratory diseases, Pulmonary Vascular Research Institute (PVRI), Pulmonary Hypertension Association UK, International CTEPH Association (ICA), Pulmonary Hypertension Association, European Respiratory Society, Hellenic Community for Pulmonary Hypertension, PHAEUROPE, Alliance for Pulmonary Hypertension, PHAWARE GLOBAL ASSOCIATION.
Pulmonary Hypertension Knowledge Sharing Platform Questions
Pulmonary Hypertension Knowledge Sharing Platform's website is https://ph-ksp.com/
Pulmonary Hypertension Knowledge Sharing Platform's LinkedIn profile is https://be.linkedin.com/company/pulmonary-hypertension-knowledge-sharing-platform
Pulmonary Hypertension Knowledge Sharing Platform's industry is
Education
Pulmonary Hypertension Knowledge Sharing Platform's top competitors are
Ern-Lung - European Reference Network For Rare Respiratory Diseases,
Pulmonary Vascular Research Institute (Pvri),
Pulmonary Hypertension Association Uk,
International Cteph Association (Ica),
Pulmonary Hypertension Association,
European Respiratory Society,
Hellenic Community For Pulmonary Hypertension,
Phaeurope,
Alliance For Pulmonary Hypertension,
Phaware Global Association.
Pulmonary Hypertension Knowledge Sharing Platform's categories are Education
Pulmonary Hypertension Knowledge Sharing Platform's founding year is 2020
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