Verified email-pattern data for Soft Bones, Inc. is currently limited. You can still use the company insights and contact sections below.
We are a patient advocacy group for a rare disease called hypophosphatasia or HPP. HPP is an inborn, genetically-inherited, error of metabolism that causes a mutation in the TNSALP or TNAP gene, causing a low level of alkaline phosphatase or ALP. HPP has a broad spectrum of severity and typically the younger a patient shows symptoms, the more serious the disease.
Our organization supports patients, clinicians and researchers to stimulate research, provide patient insights, gather best practices to ultimately improve the lives of families living with this metabolic bone disease. We partner with other organizations to fulfill our mission. Our vision is a world free of HPP and our goal is to put ourselves out of business.
Company Details
- Employees
- 9
- Founded
- -
- Address
- 141 Hawkins Place,
- Industry
- Non-Profit Organizations
- Website
- http://www.softbones.org
- Keywords
- at….
- HQ
- Boonton, New Jersey
Soft Bones, Inc. Questions
Soft Bones, Inc.'s website is http://www.softbones.org
Soft Bones, Inc.'s LinkedIn profile is https://www.linkedin.com/company/softbones
Soft Bones, Inc. has
9 employees.
View email and phone details for 9
employees at Soft Bones, Inc..
Soft Bones, Inc.'s industry is
Non-profit Organizations
Soft Bones, Inc.'s top competitors are
Rheum Review,
Riley Pasek Canty Seltzer Llp,
Continuum Group Ltd,
Green Room Communications,
Ern Bond - European Reference Network On Rare Bone Diseases,
Sandpiper Talent,
Rockblox,
Soft Bones Inc The Us Hypophosphatasia Foundation,
Focused Inspection Group Llc,
Behind The Mystery.
Soft Bones, Inc.'s categories are Non-profit Organizations
Soft Bones, Inc.'s founding year is 2009
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