Alexandra Heumber Perry
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Alexandra Heumber Perry Email & Phone Number

CEO Rare Diseases International at RARE DISEASES INTERNATIONAL
Location: Geneva, Switzerland 9 work roles 4 schools
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Current company
Role
CEO Rare Diseases International
Location
Geneva, Switzerland
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Alexandra Heumber Perry is listed as CEO Rare Diseases International at RARE DISEASES INTERNATIONAL, a with 10 employees, based in Geneva, Switzerland. AeroLeads shows a matched LinkedIn profile for Alexandra Heumber Perry.

Alexandra Heumber Perry previously worked as CEO at Rare Diseases International and Global Health Diplomacy & Public Affairs - Founder CEO AHP Consulting at Alexandra Heumber Perry Consulting. Alexandra Heumber Perry holds Ipma Certification Level D, Project Management from International Project Management Association.

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RARE DISEASES INTERNATIONAL

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Profile bio

About Alexandra Heumber Perry

I am a global health public affairs professional with 20 years' experience at international, European and national levels in government relations and multi-stakeholders' partnership building. I have a deep-rooted conviction in patient advocacy, multilateralism and diplomacy to improve global health. I have dedicated my entire career to contribute improving healthcare policies to benefit people living with diseases. I have operated in Geneva for 10 years following 10 years in Brussels, and have built a wide and reliable network working with international and European institutions, government representatives, patient groups, and the private sector.I have a track record in successfully initiating and leading projects with multidisciplinary and remote teams, using my public affairs and health diplomacy skills to achieve major changes:- Supported the negotiations for the adoption by the World Health Assembly of a resolution on diagnostics- Contributed to the adoption by the World Health Assembly of recommendations and the Acceleration Plan on Obesity- Developed and implemented the strategy to make neurology a global health priority - Set-up and run a global alliance on neurological disorders (OneNeurology Partnership)-

Listed skills include Public Policy, Sustainability, Project Management, International Development, and 10 others.

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RARE DISEASES INTERNATIONAL
Rare Diseases International
CEO Rare Diseases International
france, aquitaine, france
Employees
10
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9 roles

Alexandra Heumber Perry work experience

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Global Health Diplomacy & Public Affairs - Founder Ceo Ahp Consulting

Alexandra Heumber Perry Consulting

Genève, Suisse

Founder and CEO of AHP Consulting (www.ahpconsulting.org), based in Geneva.Clients included:- The Lancet Commission on diagnostics- World Obesity Federation- World Federation of Hemophilia- OneNeurology Partnership (12 global and regional neurological organizations partnering to make neurology a global health priority)

Mar 2020 - Jun 2023

Executive Director

Iafme (International Alliance For Myalgic Encephalomyelitis)

Geneva Area, Switzerland

Established a new organisation gathering 12 national patient organisations worldwide. Elaborated and implemented, in conjunction with the members, a strategic framework including the adoption of rules of governance, vision and mission, advocacy and fundraising strategy.Steered the design of the organisational brand identity and oversaw communications, website, and social media platforms. Significantly increased the profile of myalgic encephalomyelitis within WHO, public health organisations, and governments by organising several public and bilateral meetings with key stakeholders. Represented IAFME at relevant international and national fora (e.g. World Health Assembly 2018 and 2019). Developed and managed strategic alliances and partnerships to increase the profile of the disease in the global health arena, notably by gathering 10 organisations facing similar challenges.

Jan 2018 - Oct 2019

Head Of Policy Affairs

Geneva Area, Switzerland

Designed and implemented actions and strategies, in coordination with 4 regional offices, to influence policies to enable a more suitable and sustainable environment for neglected diseases R&D. Led advocacy activities at WHO level leading to adding Mycetoma on the list of 18 neglected tropical diseases defined by WHO, through the adoption of a WHA resolution, resulting in an official programme ran by WHO and more political and funding attention for the disease. Led the successful DNDi’s R&D Visceral Leishmaniasis project application of WHO demonstration project process. DNDi’s project ranked number one among more than 200 R&D projects putting in place innovative mechanisms for innovation and access. This provided to DNDi and the disease with more visibility vis-a-vis international donors and policy makers and a grant of 2.4 Million USD.

Apr 2013 - Mar 2016

Founder Generis Pa Consultancy In Public Affairs

Generis Pa Consultancy In Public Affairs

Brussels Area, Belgium

Provided strategic advice in EU and International pharmaceutical, access to heath and trade policies. Clients included industry associations, NGOs and individual companies.

Nov 2011 - Sep 2013

Policy Advisor-Eu Representative

Brussels Area, Belgium

Set-up and run the secretariat of the European Parliament`s Working Group on Innovation, Access to Medicines and Poverty-Related Diseases by developing a global network of Members of the European Parliament, NGOs, academics, and R&D experts. Built up and implemented actions and strategies to influence EU policies that promote measures to improve access and innovation for medical tools. Coordinated external and internal MSF Campaign advocacy and communication on EU issues particularly between Geneva and Brussels.

Mar 2006 - Dec 2011

Policy Officer

Ottawa, Canada Area

Undertook a major analysis of regulatory and intellectual property (IP) issues in the framework of the review of the Canadian Food and Drug Act and the Canadian Patent Act. Participated in implementation of the “Jean Chrétien Pledge to Africa” for access to medicines.

Apr 2005 - Sep 2005

Intellectual Property And Regulatory Associate

Reading, United Kingdom

Monitored and advised on European IP and regulatory issues. Ensured company compliance with the European pharmaceutical legislation (data exclusivity, mutual recognition procedure, and EMEA guidelines).Coordinated with Apotex Canada and participated in elaborating projects and company strategy.

May 2004 - Nov 2004

Policy Officer

Brussels Area, Belgium

Monitored, researched & advocated on IP and pharmaceutical issues during the EU Pharmaceutical Review. Enhanced relations with the French government and French MEPs. Organised and managed workshops and membership committees. Liaised with the project partners and members.

Sep 2002 - Apr 2004
Team & coworkers

Colleagues at RARE DISEASES INTERNATIONAL

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4 education records

Alexandra Heumber Perry education

Ipma Certification Level D, Project Management

International Project Management Association
FAQ

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What company does Alexandra Heumber Perry work for?

Alexandra Heumber Perry works for RARE DISEASES INTERNATIONAL.

What is Alexandra Heumber Perry's role at RARE DISEASES INTERNATIONAL?

Alexandra Heumber Perry is listed as CEO Rare Diseases International at RARE DISEASES INTERNATIONAL.

Where is Alexandra Heumber Perry based?

Alexandra Heumber Perry is based in Geneva, Switzerland while working with RARE DISEASES INTERNATIONAL.

What companies has Alexandra Heumber Perry worked for?

Alexandra Heumber Perry has worked for Rare Diseases International, Alexandra Heumber Perry Consulting, Iafme (International Alliance For Myalgic Encephalomyelitis), Drugs For Neglected Diseases Initiative - Dndi, and Generis Pa Consultancy In Public Affairs.

Who are Alexandra Heumber Perry's colleagues at RARE DISEASES INTERNATIONAL?

Alexandra Heumber Perry's colleagues at RARE DISEASES INTERNATIONAL include Luciana Escati Peñaloza, Chiuhui Mary Wang, Yann Le Cam, Gaia Esposito, and Alanna Miller.

How can I contact Alexandra Heumber Perry?

You can use AeroLeads to view verified contact signals for Alexandra Heumber Perry at RARE DISEASES INTERNATIONAL, including work email, phone, and LinkedIn data when available.

What schools did Alexandra Heumber Perry attend?

Alexandra Heumber Perry holds Ipma Certification Level D, Project Management from International Project Management Association.

What skills is Alexandra Heumber Perry known for?

Alexandra Heumber Perry is listed with skills including Public Policy, Sustainability, Project Management, International Development, Pharmaceutical Industry, International Relations, Recherche, and Organisation Non Gouvernementale.

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